Pediatric

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National Children’s Hospice Palliative Care Day is Thursday October 10th. 

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"National Children’s Hospice Palliative Care Day raises awareness about the importance of children’s hospice palliative care and how it improves the quality of living and dying for children with serious illnesses and their families. The campaign is co-hosted by CHPCA and the Canadian Network of Palliative Care for Children (CNPCC), every year on the second Thursday of October." Source: Canadian Hospice Palliative Care Association CHPCA

"Every child and teen deserves a full, happy life filled with love. How can we make sure that happens for children with a serious illness? That’s where children’s hospice palliative care teams come in. The focus of Pediatric Palliative Care is on improving the quality of life of the child and their family. That means support for:

  • Symptom management

  • Emotional and spiritual needs

  • Building connections with other children and families on similar journeys

  • Making memories and finding joy as a family

  • And so much more!

Pediatric Palliative Care teams are there to lighten the load, to walk alongside families on this journey, and to give them the support and resources they need so they can focus on the little joys and precious moments together.

This day is a call to action. It’s time to recognize that children’s hospice palliative care is not just a specialty. It is a shared responsibility across healthcare and communities to help children and families Make Every Day Count.” Source: CHPCA

To learn more, visit National Children’s Hospice Palliative Care Day. Canadian Hospice Palliative Care Association (CHPCA) 

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National Children’s Hospice Palliative Care Day is Thursday October 10th.

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"The main goal of palliative care is quality of life, including relief from symptoms of physical and emotional illness and stress. Palliative care is appropriate for any child that has received a serious diagnosis or for whom the prognoses has become serious. The PPC team helps to coordinate your child’s care and can act as a liaison between you and the care team (and, really, everyone in your life who is involved with this illness journey)." Source: Courageous Parents Network (CPN)

"Pediatric palliative care providers can help with a whole host of challenges that may arise during a child’s cancer treatment. It isn’t just symptom management. This can include navigating difficult conversations and serving as an interpreter for the child." Source: Courageous Parents Network (CPN)

"What if" conversations are hard. However, having them with your clinicians can help you find the anticipatory guidance you crave and help you better define your goals of care for your child. Understand more about goals of care by visiting the CPN website". Source: Courageous Parents Network (CPN)

Watch Dr. Toluwalase Ajayi, a Pediatric Palliative Care physician explain the "PERSON Model" to explore what parents/caregivers are wondering for their child: 

  • Perception

  • Explore

  • Relate

  • Sources of Worry 

  • Outlining Next Steps

  • Notify 

via Courageous Parents Network (CPN) https://courageousparentsnetwork.org/videos/a-palliative-care-md-on-the-person-model-for-assessing-peoples-goals-of-care

To learn more about Palliative Care and how can help, visit CPN at https://courageousparentsnetwork.org/topics/how-palliative-care-helps:

Visit the incredible FREE resource - The Courageous Parents Network (CPN) mobile APP - a quick and easy way for families caring for very sick children, and the providers who support them, to find, save, carry and share Courageous Parents Network (CPN) content (videos, podcasts, guides and more resources) and register for free CPN events.