National Children’s Hospice Palliative Care Day is Thursday October 10th.

"National Children’s Hospice Palliative Care Day raises awareness about the importance of children’s hospice palliative care and how it improves the quality of living and dying for children with serious illnesses and their families. The campaign is co-hosted by CHPCA and the Canadian Network of Palliative Care for Children (CNPCC), every year on the second Thursday of October." Source: Canadian Hospice Palliative Care Association CHPCA

"Every child and teen deserves a full, happy life filled with love. How can we make sure that happens for children with a serious illness? That’s where children’s hospice palliative care teams come in. The focus of Pediatric Palliative Care is on improving the quality of life of the child and their family. That means support for:

• Symptom management

• Emotional and spiritual needs

• Building connections with other children and families on similar journeys

• Making memories and finding joy as a family

• And so much more!

Pediatric Palliative Care teams are there to lighten the load, to walk alongside families on this journey, and to give them the support and resources they need so they can focus on the little joys and precious moments together.

This day is a call to action. It’s time to recognize that children’s hospice palliative care is not just a specialty. It is a shared responsibility across healthcare and communities to help children and families Make Every Day Count.” Source: CHPCA

To learn more, visit National Children’s Hospice Palliative Care Day. Canadian Hospice Palliative Care Association (CHPCA) 

National Children’s Hospice Palliative Care Day is Thursday October 10th.

"The main goal of palliative care is quality of life, including relief from symptoms of physical and emotional illness and stress. Palliative care is appropriate for any child that has received a serious diagnosis or for whom the prognoses has become serious. The PPC team helps to coordinate your child’s care and can act as a liaison between you and the care team (and, really, everyone in your life who is involved with this illness journey)." Source: Courageous Parents Network (CPN)

"Pediatric palliative care providers can help with a whole host of challenges that may arise during a child’s cancer treatment. It isn’t just symptom management. This can include navigating difficult conversations and serving as an interpreter for the child." Source: Courageous Parents Network (CPN)

"What if" conversations are hard. However, having them with your clinicians can help you find the anticipatory guidance you crave and help you better define your goals of care for your child. Understand more about goals of care by visiting the CPN website". Source: Courageous Parents Network (CPN)

Watch Dr. Toluwalase Ajayi, a Pediatric Palliative Care physician explain the "PERSON Model" to explore what parents/caregivers are wondering for their child: 

• Perception

• Explore

• Relate

• Sources of Worry 

• Outlining Next Steps

• Notify 

via Courageous Parents Network (CPN) https://courageousparentsnetwork.org/videos/a-palliative-care-md-on-the-person-model-for-assessing-peoples-goals-of-care

To learn more about Palliative Care and how can help, visit CPN at https://courageousparentsnetwork.org/topics/how-palliative-care-helps:

Visit the incredible FREE resource - The Courageous Parents Network (CPN) mobile APP - a quick and easy way for families caring for very sick children, and the providers who support them, to find, save, carry and share Courageous Parents Network (CPN) content (videos, podcasts, guides and more resources) and register for free CPN events. 

On Mother's Day...

Thinking of everyone on Mother's Day, in a multitude of ways... for all this day means for you, and for all that it holds, sending love and light.

Wishing grace and peace. ❤️

Día de Los Muertos: A Time to Grieve & Remember

Day of the Dead is a rare holiday for celebrating death and life. It is unlike any holiday where mourning is exchanged for celebration. Day of the Dead is a holiday to remember loved ones by sharing a meal with them as one would when they were alive.

Calaveras (Skulls) are ubiquitous during Day of the Dead. The skulls are often drawn with a smile as to laugh at death itself. They take many forms such as sugar candies, clay decorations, and most memorable: face painting. Sugar skulls are decorated and placed on ofrendas (altars) of loved ones. Marigolds are believed to be the pathways that guide the spirits to their ofrendas and they symbolize the beauty and fragility of life.

Dia de los Angelitos (Day of the little angels) starts the holiday at midnight on Nov 1st, where the spirits of all deceased children are believed to be reunited with their families for 24 hours. Families construct an altar, known as an ofrenda, with the departed child’s favorite snacks, candies, toys, and photographs to encourage a visit from their departed children. The names of the departed children will often be written on a sugar skull.

At midnight of the following day (November 2nd), the celebrations shift to honor the lives of the departed adults. The night is filled with laughter and fun memories, much like the night before. However, the Ofrendas take on a more adult-like theme with tequila, pan de muerto, mezcal, pulque and jars of Atole. Families will also play games together, reminisce about their loved ones, and dance while the village band plays in their town

The next day is the grand finale and public celebration of Dia de Muertos. In more recent times, people come together in their cities, dressed up with Calavera painted faces (Skeletons) and have parades in the streets. Cemetery visits are also common on the last day as families will go to decorate the grave sites with Marigold flowers, gifts, and sugar skulls with the departed’s name on them. It’s customary to clean the grave stone and restore the color.

Source: https://dayofthedead.holiday/

Today is National Children’s Hospice Palliative Care Day in Canada

October 12th, 2023 marks National Children’s Hospice Palliative Care Day in Canada. The campaign aims to raise awareness about the importance of pediatric hospice palliative care and improve the quality of living and dying for infants, children and youth with life-threatening conditions and their families. National Children’s Hospice Palliative Care Day is held on the second Thursday of October annually.

In the delicate tapestry of a child’s life, every thread counts. National Children’s Hospice Palliative Care Day celebrates the art of “Weaving the Fabric of Care,” applauding the dedication, compassion, and advocacy of those caring for children with serious illnesses.

This day is a call to action, a chance to embrace the essential threads of care that comfort and support families navigating a child’s serious illness when they need it most. It’s about recognizing that children’s hospice palliative care is not just a specialty; it’s a shared responsibility across healthcare and communities.

We invite you to join this heartfelt movement. It’s a journey of awareness, empowerment, and care. Together, we can make a difference in the lives of youth and their loved ones through a holistic and family-centered approach to care.

Become an advocate – for each child, for every family. Discover the world of children’s hospice palliative care and equip yourself with the knowledge to identify those who would benefit most from its supportive embrace. You can be the voice that echoes through the corridors of healthcare, championing this approach to care, and the professionals of all stripes that provide it.

“Weaving the Fabric of Care” is not just a slogan; it’s a promise. A promise that anyone can integrate a palliative approach into every facet of their care. A promise that we can improve the quality of life of a seriously ill child and their family together through this approach, whether you are a nurse, allied health professional, social worker, or even a volunteer.

Let us unite our hearts, weave our stories, and together, create a quilt of care that enfolds every child in warmth, comfort, and dignity. Join us on this journey, as we weave the fabric of care, one thread at a time.

Source: The Canadian Hospice Palliative Care Association
For more information, please visit The Canadian Network Of Palliative Care For Children

Supporting children and youth who have a family member with an advanced serious illness

Supporting children and youth who have a family member with an advanced serious illness via NACG The Dougy Center & KinderCare

At some point, we all encounter a child or teen who is living with the anxiety of a family member’s life-limiting illness. You can have the opportunity to be a support person, providing empathy as they face the serious illness, grief, loss and perhaps death, of a family member.

Some considerations include: Listen, Acknowledge, Understand, Provide Consistency, Help, Safety, Provide Resources

Source: https://childrengrieve.org/12-resource/309-resources-2

Today is Children's Grief Awareness Day (#GGAD)

CGAD is designed to help us all become more aware of the needs of grieving children teens and families — and of the benefits they obtain through the support of others. Children's Grief Awareness Day is an opportunity to make sure that grieving children receive the support they need.

Before they graduate from high school, one child out of every 20 children will have a parent die - and that number doesn't include those who experience the death of a brother or sister, a close grandparent, an aunt or uncle, or friend.

Grieving children often feel set apart, different from their peers, alone and not understood. Every school and every community has children who have experienced some type of loss. Even if they keep their loss and experience to themselves, there are many children who are grieving among us.

These children can be helped to not feel so alone. Children and adults together can show their support for grieving children and show their awareness of what grieving children might be going through by participating in Children's Grief Awareness Day.

Source: CGAD. For more information or resources, visit: https://www.childrensgriefawarenessday.org/cgad2/about/index.shtml

DID YOU KNOW???? On CGAD, the CN Tower / La Tour CN will be illuminated in blue to raise awareness of this important issue

Searching for Meaning and Finding a “New Normal”

Grateful to The Leukemia & Lymphoma Society of Canada for the opportunity to co-present Searching for Meaning and Finding a “New Normal” with author and advocate Aviva Rubin.

This free webcast briefly explored the impact of a cancer diagnosis - both on the individual and family. Additionally, the non-medical implications following a diagnosis were addressed and further highlighted some of the challenges in moving forward and finding a "new normal."

This free webcast is now archived for viewing. For information or to view, please visit The Leukemia & Lymphoma Society of Canada

Caring for the Caregiver: Recognizing the Impact of Vicarious Trauma on Helpers and Strategies for Self-Care

Am truly honoured to be offering the Plenary Session “Caring for the Caregiver: Recognizing the Impact of Vicarious Trauma on Helpers and Strategies for Self-Care“ for the Annual Children’s Grief Awareness Symposium at Lighthouse Centre for Grieving Children, Youth and Families.

For information or to register, please visit: https://www.grievingchildrenlighthouse.org/index.php/news-and-events/upcoming-events/104-events/upcoming-events/events-2019/482-grief-symposium-2019#live-session-descriptions

About the Lighthouse Centre for Grieving Children, Youth and Families:

“The Lighthouse provides a place where children, teens, and their parents and guardians who have experienced a life changing death loss can come together to be part of a community. Through participation in facilitated peer groups, they find understanding, stability and support.

Any child or teen, ages 3-19, who has experienced the death of an immediate family member or very close friend can join a group. Parents and guardians are welcome to attend the adult peer support groups which are offered at the same time as the children/teen groups.

Often, family members feel the need to protect one other from their feelings. At The Lighthouse, children and youth have their own space where they can feel safe to share their feelings with peers who have also experienced a life changing death. This expression of feelings, thoughts and experiences helps them reach an understanding of their loss and builds hope and encouragement for their future.”

Source: Lighthouse

To donate to the Lighthouse Centre for Grieving Children, Youth and Families, please visit: https://www.grievingchildrenlighthouse.org/index.php/support-us

Function in the Midst of Dysfunction: Supporting Families Facing Serious Illness

Honoured to be a Clinical Lead at Camp Erin Toronto - a FREE bereavement camp for kids and teens

Am honoured to be a Clinical Lead for Camp Erin Toronto, an incredible FREE weekend bereavement camp for children and youth aged 6-17.   

Camp Erin Toronto is provided FREE to families and is open to any child who has experienced the death of an immediate family member or custodial caregiver, regardless of cause or length of time since the death.  Activities focus on providing campers with the tools needed to help them in their grief and with difficult experiences throughout their lives, while enhancing overall wellness, play and vitality. 

Camp Erin gives children and youth the opportunity to meet with other grieving kids in a fun and natural environment; understanding that they are not the only ones to experience the death of someone close to them decreases the sense of isolation that many grieving children experience.  Source: https://drjaychildrensgriefcentre.ca/programs/camp-erin/

As a registered charity that DOES NOT RECEIVE GOVERNMENT FUNDING, Camp Erin Toronto depends on the generosity of donors. For information, to refer or to donate, please visit: https://drjaychildrensgriefcentre.ca/programs/camp-erin/

For information on other Camp Erin locations in Canada and the U.S. visit: https://elunanetwork.org/camps-programs/camp-erin/

FREE family support group when a child has been diagnosed with cancer

Am honoured to be co-facilitating this FREE support group for families when a child has been diagnosed with cancer.

Each evening session begins with community-building and a light dinner is provided for all in attendance. This family support group at Wellspring is professionally facilitated and provides an opportunity for parents of children with cancer to connect for mutual support, for the sharing of ideas, for discussion and for networking. While the parents meet, the children (ages 5-13) will meet simultaneously in a separate group and focus on themed therapeutic activities designed to assist with their psychosocial needs.

Upcoming Dates:

• Mon Mar 18, 2019: 6:00pm - 8:00pm

• Mon Mar 25, 2019: 6:00pm - 8:00pm

• Mon Apr 1, 2019: 6:00pm - 8:00pm

• Mon Apr 8, 2019: 6:00pm - 8:00pm

Registration is Required. Please note: This program requires a commitment for families to attend all sessions. For information, or to register, please contact 905-257-1988 or 1-877-499-9904.

Free Family Event Celebrating Life, Death and Meaningful Connections

Grief and Loss impacts Everyone.

Am honoured to co-host and co-facilitate this free public event. In support of Children's Grief Awareness Day and National Bereavement Day, "The 100% Certainty Project – Death: Something to Talk About" is hosting a FREE public event for parents and children at the Hamilton Public Library. Please join us for:

- a reading of the children’s book The Funeral by Matt James, award-winning Author

- a creative family activity exploring grief, loss and meaningful connections

- grief and bereavement resources from Canadian Hospice Palliative Care Association & Canadian Virtual Hospice

CBC Books on The Funeral: "This sensitive and life-affirming story will lead young readers to ask their own questions about life, death and how we remember those who have gone before us"

Please note, this is not a counselling session or grief support group.

While this is a free event, registration is REQUIRED via:  https://www.eventbrite.ca/e/free-public-event-for-parents-and-children-on-grief-and-bereavement-tickets-50531981517

Support for individuals and families across Canada facing Pancreatic Cancer

Am honoured to be part of this brilliant new initiative offering free support to anyone facing Pancreatic Cancer across Canada. This initiative is a collaboration between Pancreatic Cancer Canada Foundation and Wellspring Cancer Support Network

For more information, or to access support, please visit: https://wellspring.ca/online-resources/pancreatic-cancer-peer-support/  

FREE resources for families facing illness, uncertainty, grief and loss

Am honoured to have been part of the development team for the latest resource, Kids Grief, which was just launched on the first National Bereavement Day in Canada. I believe it is important to share these valuable resources for individuals and families facing illness, uncertainty, grief and loss. This information is also helpful for any healthcare professional or volunteer wanting more information and resources when providing support in acute care, primary care or within a community setting.

The Canadian Virtual Hospice provides support and personalized information about palliative and end-of-life care to patients, family members, health care providers, researchers and educators. (Source: Canadian Virtual Hospice)

Kids Grief (0-18 yrs.) http://kidsgrief.ca/

Talking with Kids and Teens about Dying and Death. What do I tell the kids? How do I support them? A free online resource to provide guidance to parents on how to support children who are grieving the dying or death of someone in their life. It equips parents with the words and confidence to help their children grieve losses in healthy ways. (Source: Canadian Virtual Hospice)

Ontario Children's Grief Awareness Family Days. Free public events

Am honoured to be a new partner agency with the Children and Youth Grief Network (CYGN). The CYGN is a collaborative of agencies and organizations that work to support grieving families of all ages.

The CYGN recognizes that "the support received by a grieving child or youth can significantly influence his/her wellbeing. As a result we aim to connect individuals and organizations who provide services and resources that benefit children and youth who are grieving a death."

As the CYGN Mission is "to advocate for educational opportunities and support services that will benefit children and youth who are grieving the dying or the death of someone they care about", in support of National Bereavement Day, the CYGN is offering 2 free community events to support grieving families.

These events are intended for parents/caregivers and their children/teens (under 18 yrs of age) who have experienced the death of a parent/caregiver, child/sibling.

This event is offered for the whole family. Children will participate in facilitated creative activities with trained grief experts, while parents/caregivers will attend a panel presentation and discussions to explore coping strategies and grief support featuring grief professionals and other bereaved families. 

Come explore grief and bereavement coping strategies specifically for families with children and teens. Connect with peers and learn more about the resources available in your community while enjoying the support of caring professionals and other families who share the grief experience.

Snacks, local grief and bereavement resources and gift bag included. 

Reserve your FREE Ontario Children's Grief Awareness Family Day seats via Eventbrite.

2 Dates and 2 Locations!

November 4th @ Wellspring Birmingham Gilgan House (Oakville) https://www.eventbrite.com/e/ontario-childrens-grief-awareness-family-day-oakville-location-tickets-38670386166

November 25th @ Wellspring Chinguacousy (Brampton) https://www.eventbrite.com/e/ontario-childrens-grief-awareness-family-day-brampton-location-tickets-38670961888