Child and Youth Grief Awareness: Resources.

Click on the Butterfly to access resource materials, information and support for grieving Children and Youth.

Children's Grief Awareness Day.

"Children's Grief Awareness Day seeks to bring attention to the fact that often support can make all the difference in the life of a grieving child. It provides an opportunity for all of us to raise awareness of the painful impact that the death of a loved one has in the life of a child, an opportunity to make sure that these children receive the support they need".

Moody Cow Meditates: A playful way to introduce children to the power of meditation.

"It all started one stupid, rotten day when everything went wrong…

Peter the cow is having a BAD day. After missing the bus and wiping out on his bike he loses his temper and gets in trouble. To make matters worse all the other kids are teasing him, calling him Moody Cow. Peter’s day just seems to get worse until his grandfather comes over and teaches him how to settle his mind and let go of his frustration through a simple and fun exercise. This vibrant and funny children’s book is a playful way to introduce children to the power of meditation. With full color illustrations by the author, Moody Cow Meditates is a wonderful book for parents and children to share together.

Look for the Moody Cow Mind Jar App for iPhone and iPad, available in the App Store and iTunes!" 

 

Finding the Words: How to talk with children and teens about death.

"It's hard to talk to children and teens about death and dying, particularly when someone they love has died or might die soon. Our instinct as caring adults may be to shelter them from painful truths. Yet as Dr. Wolfelt emphasizes, what kids need most is our honesty and our loving presence.

This practical and compassionate handbook includes dozens of suggested phrases to use with preschoolers, school-agers, and teenagers as you explain death in general or the death of a parent, a sibling, a grandparent, or a pet. Other chapters include possible words and ideas to draw on when you are talking to kids about a death by suicide, homicide, or terminal illness. At times grown-ups must also have very difficult conversations with dying children; this book offers guidance. A final chapter discusses how to talk with kids about funerals, burial, and cremation".

Stop, Breathe, Think. Get Meditating in 5 Minutes. Easy!

"A friendly, simple tool to guide people of all ages and backgrounds through meditations for mindfulness and compassion".

Inpatient Hospice Palliative Care Directory free via iOS and Android.

"Although some people hope to remain at home for the duration of their illness, many people find that admission to an inpatient setting can also be helpful. The inpatient care settings in the directory include palliative care units, residential hospices and dedicated palliative care beds within local hospitals. Inpatient hospice palliative care support includes 24 hour care, specialist pain and symptom management and psychosocial support for patients and families.

The map provides access to a directory which includes more information about inpatient hospice palliative care settings across Ontario. The list of facilities below may not be complete - there may be hospice palliative care settings which are not in the directory.

For contact information and details about the facility, click on a specific location. If you want more information, contact the hospice or palliative care program directly".

This App Will Help You Sort Through Your Views On Dying.

"There are apps for nearly everything -- ordering food, catching rides and finding dates, to name just a few of the common tasks people accomplish via a swipe of a screen. Now, a Boston-based company wants to make thinking about and planning for death just as simple.

Cake, as in “a piece of cake,” is a website and soon-to-launch app that asks people a series of yes-or-no questions about the end of their lives in order to help them think about certain issues, plans and needs. The topics include funeral preferences and financial planning, as well as whether there are places people want to see before dying and how satisfied they would be with their relationships if they died tomorrow.

'One of the biggest problems right now is that even if you want to have these conversations, most of us have no idea where to start. It's daunting and overwhelming,' Chen said.

'Even though we know ourselves, we may not truly understand our own values around end of life because most of us haven't spent much time thinking about it. We developed the app as a way to ease people into thinking about the end of life'.

The app is targeted toward users who want to talk about dying to their loved ones, as well as those who want to share their end-of life-wishes with their doctors and caretakers.

'We interviewed dozens of health care professionals and routinely heard doctors say that bringing up advance care planning ‘is the hardest part of my job.’ Even doctors who are trained in how to have these conversations find it challenging to bring up,' Chen said. 'Additionally, there's often not a lot of time at the doctor's office. It makes sense to provide a synchronous tools that empower people to think about things on their own and with their families while they're in the waiting room, or at home'.”

Best Endings. End of Life Planning Made Easier.

"It’s not just medical decision at end of life: we each have personal preferences. This often needs time and thought.

3 points to keep in mind:

  1. Thinking about your end-of-life can be exhausting and emotional.
  2. Thinking through what’s important often means having ‘Aha!’ moments about yourself.
  3. Determining personal choices at end of life can give you and yours peace of mind.

What’s important?

What to consider?

How much do I want to know?

You are The Boss"!

"My Directives". Now’s the time to get started.

“Emergencies can happen at any time, leaving you too injured or ill to communicate decisions about your medical treatment. MyDirectives helps you create your own emergency medical care plan for your family and doctors so they can make decisions on your behalf".

Bearing Witness to Suffering. ~ Laura van Dernoot Lipsky

In this talk, Laura offers us a window into the cumulative toll that can occur when we are exposed to the suffering, hardship, crisis or trauma of humans, other living beings, or the planet itself. Held within a larger context of systematic oppression and liberation theory, we'll dive into what gets hard and how to work toward reconciling it both individually and collectively.

Life and Death Planning: Low effort, High Reward. "Get Your Shit Together" Webresource

"There are a few simple things I wish I had taken care of before my life went sideways, like a will, living will, and some details jotted down. Should the ground fall out from under your feet—plan now for a softer landing. In fact, it's easy to finish the planning and basic papers your life needs.

In 2009 my husband was killed in an accident. In the following hours, weeks, and months I was shocked by the number of things we had left disorganized or ignored. Critical documents you can spend a fraction of the time doing now. Here are those core items, streamlined.

GYST™ now and breathe a huge sigh of relief. You can do it".

Advance Care Planning. Speak Up!

"Advance Care Planning is a process of reflection and communication. It is a time for you to reflect on your values and wishes, and to let people know what kind of health and personal care you would want in the future if you were unable to speak for…

"Advance Care Planning is a process of reflection and communication. It is a time for you to reflect on your values and wishes, and to let people know what kind of health and personal care you would want in the future if you were unable to speak for yourself.

It means having discussions with family and friends, especially your Substitute Decision Maker – the person who will speak for you if you cannot speak for yourself. It may also include writing down your wishes, and talking with healthcare providers and financial or legal professionals"

Click on the above image to learn more.

The Way Forward: An Integrated Palliative Approach to Care.

"Imagine a time when hospice palliative care is available to Canadians when and where they need it; where living well until death is the goal of care". 

Palliative Care Sooner for Patients But Also for Medical Professionals.

"Changing culture is a process. Awareness and understanding of palliative care is often limited, yet the benefits are discernible from better quality of life to care more consistent with patient preferences, to more recent data indicating improved s…

"Changing culture is a process. Awareness and understanding of palliative care is often limited, yet the benefits are discernible from better quality of life to care more consistent with patient preferences, to more recent data indicating improved survival. My experience with palliative medicine as a first-year medical student has made me realize how vital palliative care education could be for all medical students".

Complicated Grief: A Grief So Deep It Won’t Die.

    " 'Adapting to loss is as much a part of us as grief itself,' said Dr. Shear, who directs the Center for Complicated Grief at the Columbia University School of Social Work. With complicated grief, 'something gets in the way of that adaptation, Something impedes the course of healing.’

     By diagnosing complicated grief just six months after a death, he said, 'you’ll get a lot of normal people receiving treatment they don’t need,' including drugs.  Dr. Shear also worries about “pathologizing” normal emotions. But when a woman remains unable to leave her home or answer the phone four years after the death of her adult son, as was true of one patient, something has clearly gone wrong. 

    ‘If you’re worried about what you’re experiencing, if you’re not getting more engaged in life and people around you are saying, ‘Honey, stop wallowing in it,’ why not get some help?' Dr. Shear said.  Complicated grief therapy, developed by her center, showed greater effectiveness among older adults than interpersonal psychotherapy in a clinical trial".

The Paternalism Preference — Choosing Unshared Decision Making.

"Consent is not merely the granting of permission but an exercise in choosing, and choice requires disclosure of a certain amount of information. How much information is adequate? Rather tautologically, as much as necessary to decide: 'The scope of the physician's communications to the patient must be measured by the patient's need, and that need is whatever information is material to the decision'.”

Words of Comfort for Someone Suffering the Loss of a Loved One.

"One of those mornings in particular, I awoke with a hauntingly beautiful piece written by Adam Lee in my mind. At the end of Lee’s essay are two exquisite paragraphs that had been used at a memorial service I attended. I have never forgotten those ever-so-comforting last two paragraphs in Lee’s essay, and when I awoke remembering them, had the distinct feeling that at that very moment there was someone who had lost someone they loved, and who was suffering, and who needed to hear those most incredible, peace-giving words".

The Art of Healing.

"As the parents of Lulu and Leo, we know that art and nature played a critical role in their short, beautiful lives and in the life of our surviving daughter, Nessie. We believe every child on the planet deserves the deep engagement with art, nature, and creativity that our children had, not simply for the sheer joy and excitement it brings children but for the powerful tool it can be. We have felt the critical importance of creativity as a healing force and want to ensure that these creative outlets are available to all children and communities facing adversity.

We created the Lulu & Leo Fund to inspire, engage, educate, heal and grow the hearts and minds of children facing hardships, giving them lifelong passion, skills and — most importantly — hope".

Grief Through a Child's Eyes.

Click on the above image to watch "Grief through a Child's Eyes" an original video that takes you inside a children's bereavement camp.

Finishing Strong: Moments of Life Made Possible by Hospice.

"In September 2012, Bryan Caldwell was diagnosed with Hodgkin’s Lymphoma. A former professional football player in the NFL, rancher and surfer, he embodies strength. His wife, Krista, a nurse with Houston Hospice El Campo, even tells the story of how the morning before he was diagnosed, Bryan mowed the yard with a collapsed lung.

Six months into his fight with lymphoma, Bryan learned his cancer was unresponsive to medical treatments. He knew he wanted to spend his remaining time living without pain, at home, surrounded by all he loved. So he chose hospice care.

'Our whole philosophy is not to stay sitting, it’s to stay moving and to keep living each moment that comes along,' says Bryan. 'Hospice provides that golden opportunity for me, every single day. If I have the energy and I feel up to it, I’m getting out there'.”