Proud, Prepared, and Protected

“Proud, Prepared, and Protected is a collection of online FREE resources to assist people who identify as 2SLGBTQ+ to access and receive inclusive, respectful care. These resources were developed by people who identify as Two-Spirit and LGBTQ+ and more than 40 organizations and Canadian Virtual Hospice to fill a national gap. This information is also helpful for allies, people working in healthcare and education and communities.” Source: Canadian Virtual Hospice

To access free resources, visit: Proud, Prepared, and Protected

Navigating the Impact of Complex Illness as a Caregiver

I was honoured to present "Navigating the Impact of Complex Illness as a Caregiver" during National Hospice Palliative Care Week to VON Canada Grey Bruce, Supportive Care Program and an incredible group of Caregivers and Care Providers.

Following the diagnosis of a complex illness, it is common for family to feel a range of emotions including sadness, anxiety, anger and hopelessness. Facing these challenges can sometimes bring people together, while often, it can feel like it pulls people apart. Caregiving requires balancing multiple roles and stressors, while also navigating grief and uncertainty.

Caregiving can feel isolating and often means losses of identity, ritual and connections. Navigating the changes and uncertainty as a caregiver is part of the added demands of an illness experience.

Harris (2016) states, "Grief is a response to disorganization that occurs after an assumption about the world is challenged by a significant loss. Conflict occurs between assumptions & situations that challenge those assumptions. Grieving is the process of how the new assumptive world is (re)formed over time"

Yet, amid all the challenges and changes, grief is carried and often unaddressed. Most assume it happens only once someone is dying or has died. So much non-death loss and grief occurs throughout our lifetime, especially following the diagnosis of a complex illness, throughout the illness experience, at time of death, and for the balance of our lives as we (re)form the world around us.

Caring in Canada (May 2024) via Canadian Centre for Caregiving Excellence provides results from the National Caregiving Survey of 3,000 Caregivers and Care Providers highlighting:
- Caregiving takes a toll on a caregiver’s wellbeing
- Caregivers are working ‘extra-shifts’
- Caregivers 65+ also need care
- Caregiving has a financial toll
- Care provider shortage is linked to poor working conditions
- Diverse communities face barriers and gaps in support

Integrated and accessible support is needed for caregivers throughout the illness experience.

*Family is best defined by the person receiving care. It can include family of origin, or chosen family.

FREE Individual Student Bereavement Plan

Returning to school can be a time of tremendous grief bursts - both expected and unexpected: from completing emergency contact forms after a parent/caregiver has died (is dying) or absent in any capacity; seeing families together when a parent or sibling is in hospital, hospice or is no longer present; witnessing the range of emotions when people talk about summer experiences filled with joy and connection when grief, loss, an accident, illness and absence has been their experience instead… While not readily visible, grief will continue to influence the life of a student impacted by loss (as they live with navigating the ongoing impact of grief & grieving).

You can access the FREE Individual Student Bereavement Plan via NACG

“This document is a resource for supporting students returning to school after they have experienced the death of a significant person in their lives. When a student returns to school, they may feel alone and challenged by the task of engaging with their daily routine. Schools are in a unique position to provide support for students with thoughtful plans specific to the individual’s needs. Students grieve developmentally, and their needs are unique and changing throughout the days, months, and years ahead. Those students that need and receive grief support have improved outcomes socially, emotionally, and academically.” Source “Individual Student Bereavement Plan”

Source: NACG

FREE Advance Care Planning (ACP) workbooks

April 16th is National Advance Care Planning Day in Canada

“If Not You, Who? Who would you trust to make your healthcare decisions? Planning for your future healthcare needs is important. So, we’re asking: Do you know what would happen if you couldn’t speak for yourself? Who would you trust to make those #healthcare decisions for you? 

You have the power to choose who that person is. They can be a family member, a friend, or anyone in your life that you trust to make the kinds of healthcare decisions you would want. 

• Think about who you would trust with making those important decisions for you. 

• Think about what matters most in your life and how that might help guide someone in making the kinds of healthcare decisions you would want.  

• The best time to think about this is now when you can speak for yourself. We have useful guides to help you along the way. 

Choosing a Substitute Decision-Maker (SDM)

Advance Care Planning policies can vary dependent on your province or territory. In order to ensure your end of life wishes are honoured it is crucial to have an understanding of your province or territory policies. This includes understanding what your #rights and #privileges are, as well as understanding the laws and regulations regarding end of life care, specific to your province or territory. While creating your advance care plan it is also important to make sure that you are using the correct documents for your province or territory. 

• Who do you trust most to make decisions for your health care that follow your wishes?

• Would that person be comfortable with making important decisions about your health quickly or in an emergency?

• Have you spoken to them about what matters most in your life? When someone knows what you value most in your life, they can make more informed decisions about your health care.

• What Matters Most? What does a good day look like for you?

• What situations do you find difficult?

• What gives you strength in difficult times?

• What spiritual, cultural or religious beliefs, practices, or ceremonies are important to you?

• What do you value more: the possibility of a longer life, or the possibility of a better quality of life? 

These questions can help guide you and your substitute decision-maker and assist them to prioritize what matters most to you when weighing care options.

April 16th is Advance Care Planning Day. So, ask yourself: If not you, who?” 

Source: Advance Care Planning Canada 

There are multiple FREE Advance Care Planning (ACP) workbooks, toolkits and guides specifically created to follow the provincial/territorial requirements for your advance care plan. Visit for FREE FREE Advance Care Planning (ACP) resources across Canada https://www.advancecareplanning.ca/acp-across-canada/

April 16th is National Advance Care Planning Day in Canada.

It’s about conversations. It’s about wishes. It’s how we care for each other.

Advance Care Planning is about having conversations with family and friends, especially your Substitute Decision Maker – the person who will speak for you if you cannot speak for yourself in case of a health emergency. It may also include writing down your wishes, and talking with healthcare providers and financial or legal professionals.

Advance care planning is a process of reflection and communication, a time for you to reflect on your values and wishes, and to let others know your future health and personal care preferences in the event that you are unable to consent or refuse treatment or other care.

1. Think about what is most important to you – your values, wishes and beliefs.

2. Learn about your overall health. This may include current conditions you want to better understand.

3. Decide on your Substitute Decision Maker(s), one or more people who are willing and able to speak, for you if you cannot speak for yourself.

4. Talk about your values, beliefs and wishes with your Substitute Decision Maker(s), family, friends and health care providers.

5. Record your values, wishes and beliefs in your Advance Care Planning Guide, in a letter, poem, video or audio recording.

Source: Advance Care Planning Canada

ADDITIONAL RESOURCES:

For more information on advanced illness, advance care planning, palliative care, end-of-life care and grief, please visit: 

Canadian Virtual Hospice www.virtualhospice.ca 

Living My Culture www.livingmyculture.ca 

Advance Care Planning Canada values a free, accessible and open shared knowledge amongst the community. The website provides you with all the necessary tools to inform yourself on the most recent advanced care planning updates and developments. For more information and FREE resources, visit: https://www.advancecareplanning.ca/

C. Elizabeth Dougherty Consulting Newsletter: Fall 2022

I am pleased to share my Fall 2022 Newsletter highlighting educational opportunities and my clinical work serving individuals, families, and healthcare providers facing complex illnesses, uncertainty and grief.

C. Elizabeth Dougherty Consulting Spring Newsletter

Exploring the Role of Social Work in Palliative Care

So grateful to speak with my friends and colleagues Drs. Hsien Seow and Sammy Winemaker on their podcast The Waiting Room Revolution.

We explored the role of Social Work in Palliative Care, the value of proactive and compassionate person and family-centred support following diagnosis of any serious illness, exploring loss and grief through to end-of-life and bereavement, creating space for essential conversations, and the healing power of silence.

Follow their podcast for essential tips and tools to navigate the healthcare system following diagnosis of a serious illness. To listen to our conversation, click here

C. Elizabeth Dougherty Consulting - Winter 2022 Newsletter

I am honoured to share my winter 2022 newsletter with free resources for individuals and families of all ages facing a complex illness, following diagnosis through to bereavement.

I am also grateful to also share teaching experiences including: undergraduate and graduate Social Work Education; undergraduate interdisciplinary education; and Interprofessional Education for healthcare providers and volunteers exploring informed conversations, honouring person and family-centred care, demystifying grief, and advocating for high-quality palliative care.

What to say (and NOT to say) when someone is grieving

Most don't know what to say when someone is grieving. Here are some suggestions to offer a grieving parent, caregiver, or colleague. These questions can also be adapted for children.

via National Alliance for Grieving Children, The Dougy Center and KinderCare Education

C. Elizabeth Dougherty Consulting - Fall 2021 Newsletter

I am honoured to share my Fall 2021 newsletter including resources for individuals and families of all ages facing a complex illness, following diagnosis through to bereavement. I am also grateful to also share my teaching experiences including: undergraduate and graduate Social Work Education; undergraduate Medical Education; and Interprofessional Education for healthcare providers exploring informed conversations, honouring person and family-centred care, demystifying grief, and advocating for palliative care.

FREE Advance Care Planning Webinar

This FREE webinar will demystify Advance Care Planning in Canada and explore the stigma alongside some common barriers. We will dive into better understanding of Advance Care Planning and why it is relevant for EVERYONE, especially now. Lastly, free national resources will be provided to assist in beginning these essential conversations. 

CLICK HERE to watch the full presentation.

Support for Grieving Young Adults (ages 18-30)

Actively Moving Forward® (AMF) is a network created in response to the needs of grieving young adults (ages 18-30) and is connecting, supporting, empowering grieving young adults to “actively move forward” in memory of their person. 

Now, a FREE AMF app offers new ways to connect!

“You’ll have full access to facilitated virtual support groups, tools, resources, reading, videos, supportive quotes, community engagement via direct messaging, group chats, posts and interactive comment boards. Group members may be tagged by person in their life that died so that members grieving a similar death loss can easily find each other.” 

Time to connect on a whole new level. Deepen friendships, engage with groups, simplified chats, find events, webinars and a host of other valuable and helpful resources.

To register for this app and access FREE bereavement support, visit Actively Moving Forward® 

Source: Actively Moving Forward - AMF, a HealGrief program

C. Elizabeth Dougherty Consulting December 2019 Newsletter

Excited to share my December 2019 newsletter with an update about free resources and community support for anyone facing serious illness, uncertainty and grief. Am also grateful to share recent teaching opportunities across Interprofessional Education, dedicated Social Work Education, a grief conference and two national webinars.

As always, I share free resources and information across my Social Media platforms. Please connect and follow me on LinkedIn, Twitter, Facebook and Instagram.

Resilience resource calendar for January 2019

Start 2019 with resolution and resilience via The Greater Good Science Center.

To download a pdf with links to all activities and articles, please visit January 2019 Happiness Calendar

Ontario Children's Grief Awareness Family Days. Free public events

Am honoured to be a new partner agency with the Children and Youth Grief Network (CYGN). The CYGN is a collaborative of agencies and organizations that work to support grieving families of all ages.

The CYGN recognizes that "the support received by a grieving child or youth can significantly influence his/her wellbeing. As a result we aim to connect individuals and organizations who provide services and resources that benefit children and youth who are grieving a death."

As the CYGN Mission is "to advocate for educational opportunities and support services that will benefit children and youth who are grieving the dying or the death of someone they care about", in support of National Bereavement Day, the CYGN is offering 2 free community events to support grieving families.

These events are intended for parents/caregivers and their children/teens (under 18 yrs of age) who have experienced the death of a parent/caregiver, child/sibling.

This event is offered for the whole family. Children will participate in facilitated creative activities with trained grief experts, while parents/caregivers will attend a panel presentation and discussions to explore coping strategies and grief support featuring grief professionals and other bereaved families. 

Come explore grief and bereavement coping strategies specifically for families with children and teens. Connect with peers and learn more about the resources available in your community while enjoying the support of caring professionals and other families who share the grief experience.

Snacks, local grief and bereavement resources and gift bag included. 

Reserve your FREE Ontario Children's Grief Awareness Family Day seats via Eventbrite.

2 Dates and 2 Locations!

November 4th @ Wellspring Birmingham Gilgan House (Oakville) https://www.eventbrite.com/e/ontario-childrens-grief-awareness-family-day-oakville-location-tickets-38670386166

November 25th @ Wellspring Chinguacousy (Brampton) https://www.eventbrite.com/e/ontario-childrens-grief-awareness-family-day-brampton-location-tickets-38670961888

Wonderful #Books that #Help #Children #Grieve and Make Sense of #Death @brainpickings #hpm

“From Japanese pop-up magic to Scandinavian storytelling to Maurice Sendak, a gentle primer on the messiness of mourning and the many faces and phases of grief.”

MyGrief.ca helps you to understand and work through your #Grief. @VirtualHospice

"MyGrief.ca Because losing someone is hard. MyGrief.ca helps you to understand and work through your grief.

• Confidential
• Access in the privacy of your own home
• Developed by families and grief experts
• Stories from people who have "been there"
• A resource for professionals"

Important Conversations with Experts in the Field about #Dying and #Death. #hpm

Important conversation about supporting quality of life and the need for universal access to Palliative Care - the comprehensive care supporting individuals and families facing a life-limiting illness from time of diagnosis to end-of-life and into bereavement.

The role of #Social #Workers in #Palliative, #end of life and #bereavement care. #hpm

"Social work is essential to palliative, end of life and bereavement care. Some social workers deliver specialist palliative care social work; many others encounter people who are close to or at the end of their life, or are becoming or are bereaved. Social workers have a great deal to offer".