Children's Grief Awareness Day (CGAD).

CGAD seeks to raise awareness of the painful impact that the death of a loved one has in the life of a child or teen, and provides an opportunity to make sure that these children and #teens receive the support they need. In just one year, over 203,000 of Canada’s 7.5 million youth under 18 will experience the death of someone in their extended family. 

1 out of every 14 children and teens will experience the death of a #parent, #caregiver or #sibling who lives in their home. These youth experience the ripple effect of multiple losses…

The death of a parent, caregiver or sibling has been found to be one of the most stressful life events that a child or youth can experience. Therefore it is important to provide children with information about grief, normalize their responses and encourage them to share their thoughts and feelings.

Children are often the hidden mourners in our society with little attention being paid to their bereavement needs. Every child has different needs, perspectives and understandings of what death means. Therefore it is important to provide children with information and education on death and grief as well as normalize their responses and encourage them to share their thoughts and feelings.

It is challenging to parent a grieving child when parents are themselves grieving. Grief is often isolating and consuming. Having access to resources and supports can help families feel connected and equipped to face their grief together.

Visit The Canadian Alliance for Children's Grief (CACG) for more information or resources. CACG is the first Canadian national group of professionals working together to ensure the accessibility of bereavement support and information to grieving children, teens and their families. Resulting from a collaborative effort amongst agencies and service providers across the country, the CACG seeks to address the barriers experienced by organizations providing services to grieving children and youth and strengthen the support offered to local communities. Source: CACG

Today is World Hospice and Palliative Care Day (#WHPCDay23)

Today is World Hospice and Palliative Care Day (#WHPCDay23).

World Hospice and Palliative Care Day is an annual unified day of action to celebrate and support hospice and palliative care around the world.

WHPCD has been marked every year on Saturday October 14th to advocate for better hospice and palliative care services around the world. The WHPCD theme for 2023 is Compassionate Communities.

Together for Palliative Care Compassionate Communities care for people, assist people to live in the place they call home, connect people to services, and raise #awareness about end-of-life issues.

We believe that palliative care working alongside compassionate communities multiplies the ability to respond to the needs of the most #vulnerable in our communities.

For more information, please visit The Worldwide Hospice Palliative Care Alliance (WHPCA)

It is National Hospice Palliative Care Week in Canada

The first full week of May marks National Hospice Palliative Care Week in Canada. Palliative care is person-centered care. That means, in part, that wherever there is a person with a life-limiting illness, palliative care can be provided. If someone is facing significant health-related suffering because of a life-limiting illness, palliative care can help regardless of the setting of care, regardless of a person’s illness or prognosis, regardless of their postal code. Palliative care is an approach that aims to alleviate the suffering of people facing a life-limiting illness. It can be provided in any setting – from hospice, to long-term care, to hospital, to home.

While access to palliative care has improved over recent years, the latest data shows that only 58% of Canadians who died in 2021-2022 received palliative care, usually in a hospital. The “Palliative Care Everywhere” campaign highlights that there are no limits on where a palliative approach to care can be provided and reminds us that wherever people face life-limiting illnesses, end-of-life, and grief, there must also be a place for palliative care.

"This week, we celebrate the indispensable and compassionate care provided by health care workers, volunteers, unpaid caregivers and many others across Canada. The impact of palliative care on a person’s quality of life and on their family is profoundly meaningful, and every person with a life-limiting illness deserves to receive this level of care," said Laurel Gillespie, CEO of CHPCA. “Sadly, less than 60% of Canadians who died last year received care from the discipline that specializes, in part, in caring for the dying. It is time for everyone in Canada to come together to build a future where ‘Palliative Care Everywhere’ is true in every postal code.” Source: CHPCA

Demystifying Hospice Palliative Care is essential!

National Hospice Palliative Care Week in Canada is May 2nd-8th, 2021.

Proactive and equitable access to Hospice Palliative Care is not standard, with barriers (including a lack of education, funding and research) contributing to the myths that impact delivering high-quality person and family-centred collaborative care. Integrated support for loss, grief and bereavement is lacking.

Did you know....

-Between 62% and 89% of those who die could benefit from palliative care, including nearly everyone who does not die unexpectedly

- 51% of the children who died in 2012 only received Paediatric Palliative Care for the last 30 days of their lives

-62% of Canadians who received palliative care did so in an acute care hospital in their last month of life

-Few Canadians (15%) have early access to palliative care in the community

-80% of the time, palliative care was provided during admission was unplanned or through an emergency department  

-Canadians between the ages of 45 and 74 are more likely than younger adults and older seniors to receive palliative care

-There are ~88 residential hospices and the majority require a prognosis of <3 months to be admitted

Source: CHPCA Fact Sheet 2021 

For more information, please visit the Canadian Hospice Palliative Care Association

Today is Children's Grief Awareness Day (#GGAD)

CGAD is designed to help us all become more aware of the needs of grieving children teens and families — and of the benefits they obtain through the support of others. Children's Grief Awareness Day is an opportunity to make sure that grieving children receive the support they need.

Before they graduate from high school, one child out of every 20 children will have a parent die - and that number doesn't include those who experience the death of a brother or sister, a close grandparent, an aunt or uncle, or friend.

Grieving children often feel set apart, different from their peers, alone and not understood. Every school and every community has children who have experienced some type of loss. Even if they keep their loss and experience to themselves, there are many children who are grieving among us.

These children can be helped to not feel so alone. Children and adults together can show their support for grieving children and show their awareness of what grieving children might be going through by participating in Children's Grief Awareness Day.

Source: CGAD. For more information or resources, visit: https://www.childrensgriefawarenessday.org/cgad2/about/index.shtml

DID YOU KNOW???? On CGAD, the CN Tower / La Tour CN will be illuminated in blue to raise awareness of this important issue

November 17th is National Bereavement Day 2020 in Canada

Grief and bereavement support is an essential element of care for individuals and families of all ages.

This year, the Canadian Hospice Palliative Care Association (CHPCA) invites Canadians on a shared journey that fosters compassion and encourages them to cope with their grief by supporting each other through living and grieving. We might be physically distant, but grief brings us together. We learn to live with the loss and grief in ways that maintain and honour our bond with the person who died but don’t limit our capacity for joy, pleasure and a meaningful life. At this trying time, we might be physically distant, but we are emotionally, spiritually and socially connected through our grief. Source: CHPCA

For more information, visit: CHPCA

Breaking Down Barriers: The Role of Social Work and Social Service Work in the Context of Complex Illness, Uncertainty and Grief

Honoured to present "Breaking Down Barriers: The Role of Social Work and Social Service Work in the Context of Complex Illness, Uncertainty and Grief" at the OCSWSSW 2018 AMED.

"Serious illness, dying and grief remain taboo in society, yet the diagnosis of a serious illness has a profound impact on an individual and their loved ones, and often results in feelings of uncertainty, isolation and grief. This presentation will explore the role of social work and social service work in providing compassionate care for individuals and families of all ages following the diagnosis of a complex illness, at end of life and into bereavement.

Elizabeth will speak to the roles of social work and social service work in providing education to demystify these issues and further advocate to break down barriers while promoting greater access to support, within our own practice and within our communities." 

For information, or to register, please visit: OCSWSSW

Many healthcare students and providers do not feel prepared to encounter dying and death

Am excited to co-facilitate this event with the Division of Palliative Care at McMaster University as we discuss, "What makes life worth living in the face of death?".

Many healthcare students and providers do not feel prepared to encounter dying and death. As part of our 100% Certainty Project. Death: Something to Talk About, this event will feature: the stunning memoir When Breath Becomes Air; will show the brilliant TED Talk from Dr. Lucy Kalanithi; and will conclude the evening with a Death Cafe where we will discuss how to make the most of our finite lives.

Dinner is provided. Registration is required and space is limited. All healthcare disciplines are welcome!

For information, or to register, visit:

https://www.eventbrite.ca/e/100-certainty-project-death-cafe-tickets-43946860242 

Palliative Care: the Pearl of Great Price

"Palliative care is the stance of being comfortable with the unknown, a stance that leads to the development of confidence, resilience, and empowerment in patients and families receiving the best care... we are all vulnerable, all subject to suffering, old age, and death..."

Source: Palliative Care: the Pearl of Great Price

What Flying Can Teach Us About Rising Above the Turbulence

“I wonder if we can find in our own heart our own pilot who will search for more calm airs. Could we move up or down a bit to find a more peaceful state of the heart? Do we buckle up and patiently persevere through the storms of life? Is the turbulence something to avoid and get over, or is it life itself? Part of life?

I know there is wisdom in looking at serenity, not at merely “transcending” the storm, but also in navigating life. We are never promised pure bliss, or perfectly smooth sailing. A mature spiritual life consists of being able to navigate the storms. This I know.

I do remember the teachings of Buddhism, reminding us that the muck that the lotus rises through sustains the flower. This I know.

But I also know that not all of these stages are equally good, equally nourishing, equally beautiful for our hearts. That there are in us, inside us, more peaceful skies. Somewhere higher, or deeper, in us there is also a calm and tranquil realm of the spirit. It is breathing with the serenity above the turbulent clouds that there are blue skies and the warm sun. It is the state of being one with the One, breathing with the Source of all the universe. And what majestic intimacy there is Here. Now.

That serene realm, above the clouds, is not There. It is here, right here already with us…”

Full Article: On Being

The Wisdom of Uncertainty

“ ‘What we’re looking for is where we are.’

Can we learn to live in joy amongst all that this great unknowing has to offer? Jack guides us through some of the key principles of the awakened heart, encouraging an attitude of graciousness toward the mysterious nature of our existence.”

Full article at JackKornfield.com

What is Advance Care Planning?

Source: Speak Up Ontario

When Grief Gets Physical: dealing with physical grief symptoms

"There is simply no way to anticipate what grief feels like.  It is one of those experiences that you can describe to someone, but it is impossible to really understand it until you are forced to live with it.  Of all the unimaginable aspects of grief, there is one thing we hear people say time and again that they really didn’t expect: physical grief symptoms. They might not have been fully able to appreciate the emotional rollercoaster of grief until they were on it, but they at least had a sense it was part of the process.  The physical stuff is something many people tell us they simply didn’t know to expect until it hit them like a ton of bricks.

When this happens, it can be distressing.  Anytime we have new, uncomfortable physical issues it is distressing.  But in grief that can sometimes be coupled with a new level of anxiety.  In the past, a headache was a headache.  After the devastating loss of a loved one, you are all-to-familiar with the reality that life can turn on a dime."

Read the full article at What's Your Grief

#Palliative Care is not about #dying, but about quality of #living @JMyersPallCare #hpm

There are a multitude of misconceptions surrounding Palliative Care - what it is and what it isn't. Sadly, many are not open to the prospect of Palliative Care because it presented as a departure from "active care" or moreover they believe that Palliative Care is only provided at end of life. It is in fact so much more than that... I truly appreciate this article demystifying the scope and breadth of Palliative Care written by Dr. Jeff Myers, a Palliative Physician, empathic clinician, extraordinary advocate and educator...

"At a time when assisted dying dominates discussion about end-of-life care, I think it’s important to address public fears around palliative care so that people can use the information to improve their quality of life.

Palliative care is not what happens when all treatments have failed. It does not mean “giving up” or “stopping the fight.” If you are fighting cancer or Lou Gehrig’s disease, palliative care means a team of people — such as doctors, nurses, social workers and others — will help make sure you have what you need to continue fighting.

As a palliative care physician, I am deeply committed to improving end-of-life experiences for people and their families. My focus is not on the disease itself but on the impact it can have, like relieving the severity of symptoms with the overall goal of improving quality of life.

It’s my job to know what matters to you and to make sure you’re not spending time and energy on bothersome symptoms that needlessly wear you down. Pain is a good example: terrible pain from cancer can be exhausting, consume a ton of energy and is worse for the body than any medications aiming to manage the pain. There is no need for a person fighting cancer to also try fighting pain.

There is now very clear evidence that people who receive specialized palliative care actually live longer than those who do not. This is why it’s so important to understand that palliative care is not about giving up — far from it. It’s about living the very best you can for as long as you do."

How might we reimagine the end-of-life experience for ourselves and our loved ones? @OpenIDEO #hpm

“ ‘...I am asking that we make space – physical, psychic room, to allow life to play itself all the way out – so that rather than just getting out of the way, aging and dying can become a process of crescendo through to the end.’ ~ BJ Miller

Each of our lives is a story. As we plan for its final chapter, we have the opportunity to incorporate our passions, relationships, and spirituality to make dying better. How might we make this process more human-centered so we can live fully until the very end? Let’s re-imagine how we prepare for, share and live through the final chapter of our story.”

Talking About #Death Won’t Kill You. @Kathykm @TEDTalks #Death #Education #hpm

"An unconventional death educator with an equal parts wry and wise delivery style, Dr. Kathy Kortes-Miller is committed to showing her audience that talking about death and dying won’t kill you. Using stories and research, Kathy extends an invitation to view death as not a taboo subject - but rather a shared life experience. Audience members walk away with shifted perspectives and a deep understanding that talking about death, without knowing or needing all the “answers”, actually brings us closer to our loved ones than we ever imagined possible."

When the #Patient Won’t Ever Get Better @danielalamasmd #hpm #ACP

“In the early moments of critical illness, the choices seem relatively simple, the stakes high – you live or you die. But the chronically critically ill inhabit a kind of in-between purgatory state, all uncertainty and lingering. How do we explain this to families just as they breathe a sigh of relief that their loved one hasn’t died? Should we use the words “chronic critical illness”? Would it change any decisions if we were to do so? Here, I find that I am often at a loss.

I was quiet on the other end of the phone line that night. Was my patient stable? For the moment, she was. But with each event like this one, and there would be more, my patient would move further from the hope of ever reclaiming that life she had had in the fall: living in her own home, watching movies, cooking. I felt that I could see the weeks and months spooling out, a moment of calm, a new emergency. But this wasn’t the time to tell her daughter, not on the phone, not tonight.

And so I told her the truth – one truth, at least. Her mother was critically ill, but stable for the night”.

@CanadianHPCAssn #National #Hospice #Palliative Care Week Busting the #Myths #hpm

National Hospice Palliative Care Week will run May 1-7, 2016 under the theme Hospice Palliative Care First and features an FAQ, Mythbusters, and includes information for health care professionals.

"There are many ways to start the conversation about end-of-life care in Canada. Spreading awareness and education is one of the best ways to advocate for change and ensure that every Canadian has access to quality hospice palliative care.

Visit the official Advance Care Planning website at www.advancecareplanning.ca for resources to share and distribute.

Learn about the integrated palliative approach to care developed by the Way Forward project at www.nationalframework.ca

Use the “Power of 10” materials developed by the Canadian Hospice Palliative Care Association to spread the word about hospice palliative care in your communities. These materials can be found here: www.chpca.net/week

Spread the materials developed for this year’s campaign “Hospice Palliative Care First” found here: www.chpca.net/hpcfirst "

Wondering What Caused the #Cancer @nytimes

"I think the question reflects a human desire to revisit events that occurred over a lifetime, and speculate whether a change in course could have avoided an untoward outcome.

In truth, though, except in very rare cases, it is almost impossible to say that a specific environmental exposure triggered a given person’s cancer. The majority of cancers arise randomly, as if thumbing their nose at our collective need to find a cause.

But that doesn’t stop me from trying, during the part of the clinic visit when it’s my turn to ask the questions. And sometimes, I even convince myself that I have uncovered that nugget of truth that explains disease".

MyGrief.ca helps you to understand and work through your #Grief. @VirtualHospice

"MyGrief.ca Because losing someone is hard. MyGrief.ca helps you to understand and work through your grief.

• Confidential
• Access in the privacy of your own home
• Developed by families and grief experts
• Stories from people who have "been there"
• A resource for professionals"