"Have the boys 'got over the worst of it'? Who knows? We take every day as it comes. We are on a journey that takes us on a bumpy and unpredictable ride, with little in the way of helpful signage. Just because we have faced a huge trauma, does not mean that we are exempt from facing further difficulties en route".
The Year I Ran Away from Christmas: A Mother’s Perspective on Grief and the Holidays.
"I have no need to run away during the holidays anymore. The other day my daughter, now a young woman, reminded me that Christmas is her favourite time of the year. I smiled and said, 'It’s mine too’."
Click the image above to read more about Judy's experience.
Getting through the holidays.
"The pressures around the holidays can be even more challenging after the death of a family member".
Click on the above image for tips that may help, as well as a Holiday Plan Worksheet to provide some guidance.
What Would You Write If You Knew You Were Dying?
This talk was given at a local TEDx event, produced independently of the TED Conferences. Writing for the future. Recording conversations Rachel has a passion for honest conversations, and recognises the precious and precarious nature of life. She supports families when an adult develops cancer and helps those at the end of life to tell their story.
"When life runs out of tomorrow's, what you realize you've got is today" ~ Rachel L. Smith
Before the tomorrow's run out, use this opportunity today to think about what you will you say to your loved ones... And then say it...
Good Grief: Healthy Ways To Help A Child Mourn Their Sibling. ~Crossroads Hospice
"Few things are as powerful as the bond between brothers and sisters. The connection can often seem unbreakable, until tested by tragedy. Without a doubt, when a child loses a sibling, it can prove a very difficult journey. But with love and support, a child can weather this journey in time.
A guiding presence ensures they process and mourn in a healthy way. While each child’s needs are unique, all parents and guardians can keep these tips in mind when discussing the loss of their sibling".
Click on the photo to access resources on this topic.
Courageous Parents Network. An Invaluable Peer Community. Webresource.
"The mission and goals of Courageous Parents Network originate in my experience parenting my daughter Cameron following her diagnosis of Tay-Sachs at the age of six-months. Tay-Sachs is a rare and incurable genetic illness that always ends in early childhood death... But, in its way, it made everything that followed possible.
We did more than survive. Despite the profound sadness of watching our beautiful daughter lose all cognitive and physical abilities, Charlie and I were able to live fully into her short life. Despite the fear we had of losing her, we were prepared to accept, face and allow her pending death. And despite the Whoosh that poured from our life and our home when we watched her die, we were able to heal and, in time, emerge from the dark fog of grief that surrounded our family.
Courageous Parents Network is about bringing these phenomena to other families who are caring for children with serious illness. It is about providing parents with the skills, tools and virtual support they need to cope and adapt during their child’s illness journey so as to make the impossible possible".
Child and Youth Grief Awareness: Resources.
Click on the Butterfly to access resource materials, information and support for grieving Children and Youth.
Children's Grief Awareness Day.
"Children's Grief Awareness Day seeks to bring attention to the fact that often support can make all the difference in the life of a grieving child. It provides an opportunity for all of us to raise awareness of the painful impact that the death of a loved one has in the life of a child, an opportunity to make sure that these children receive the support they need".
Moody Cow Meditates: A playful way to introduce children to the power of meditation.
"It all started one stupid, rotten day when everything went wrong…
Peter the cow is having a BAD day. After missing the bus and wiping out on his bike he loses his temper and gets in trouble. To make matters worse all the other kids are teasing him, calling him Moody Cow. Peter’s day just seems to get worse until his grandfather comes over and teaches him how to settle his mind and let go of his frustration through a simple and fun exercise. This vibrant and funny children’s book is a playful way to introduce children to the power of meditation. With full color illustrations by the author, Moody Cow Meditates is a wonderful book for parents and children to share together.
Look for the Moody Cow Mind Jar App for iPhone and iPad, available in the App Store and iTunes!"
Finding the Words: How to talk with children and teens about death.
"It's hard to talk to children and teens about death and dying, particularly when someone they love has died or might die soon. Our instinct as caring adults may be to shelter them from painful truths. Yet as Dr. Wolfelt emphasizes, what kids need most is our honesty and our loving presence.
This practical and compassionate handbook includes dozens of suggested phrases to use with preschoolers, school-agers, and teenagers as you explain death in general or the death of a parent, a sibling, a grandparent, or a pet. Other chapters include possible words and ideas to draw on when you are talking to kids about a death by suicide, homicide, or terminal illness. At times grown-ups must also have very difficult conversations with dying children; this book offers guidance. A final chapter discusses how to talk with kids about funerals, burial, and cremation".
Stop, Breathe, Think. Get Meditating in 5 Minutes. Easy!
"A friendly, simple tool to guide people of all ages and backgrounds through meditations for mindfulness and compassion".
Inpatient Hospice Palliative Care Directory free via iOS and Android.
"Although some people hope to remain at home for the duration of their illness, many people find that admission to an inpatient setting can also be helpful. The inpatient care settings in the directory include palliative care units, residential hospices and dedicated palliative care beds within local hospitals. Inpatient hospice palliative care support includes 24 hour care, specialist pain and symptom management and psychosocial support for patients and families.
The map provides access to a directory which includes more information about inpatient hospice palliative care settings across Ontario. The list of facilities below may not be complete - there may be hospice palliative care settings which are not in the directory.
For contact information and details about the facility, click on a specific location. If you want more information, contact the hospice or palliative care program directly".
This App Will Help You Sort Through Your Views On Dying.
"There are apps for nearly everything -- ordering food, catching rides and finding dates, to name just a few of the common tasks people accomplish via a swipe of a screen. Now, a Boston-based company wants to make thinking about and planning for death just as simple.
Cake, as in “a piece of cake,” is a website and soon-to-launch app that asks people a series of yes-or-no questions about the end of their lives in order to help them think about certain issues, plans and needs. The topics include funeral preferences and financial planning, as well as whether there are places people want to see before dying and how satisfied they would be with their relationships if they died tomorrow.
'One of the biggest problems right now is that even if you want to have these conversations, most of us have no idea where to start. It's daunting and overwhelming,' Chen said.
'Even though we know ourselves, we may not truly understand our own values around end of life because most of us haven't spent much time thinking about it. We developed the app as a way to ease people into thinking about the end of life'.
The app is targeted toward users who want to talk about dying to their loved ones, as well as those who want to share their end-of life-wishes with their doctors and caretakers.
'We interviewed dozens of health care professionals and routinely heard doctors say that bringing up advance care planning ‘is the hardest part of my job.’ Even doctors who are trained in how to have these conversations find it challenging to bring up,' Chen said. 'Additionally, there's often not a lot of time at the doctor's office. It makes sense to provide a synchronous tools that empower people to think about things on their own and with their families while they're in the waiting room, or at home'.”
Best Endings. End of Life Planning Made Easier.
"It’s not just medical decision at end of life: we each have personal preferences. This often needs time and thought.
3 points to keep in mind:
- Thinking about your end-of-life can be exhausting and emotional.
- Thinking through what’s important often means having ‘Aha!’ moments about yourself.
- Determining personal choices at end of life can give you and yours peace of mind.
What’s important?
What to consider?
How much do I want to know?
You are The Boss"!
"My Directives". Now’s the time to get started.
“Emergencies can happen at any time, leaving you too injured or ill to communicate decisions about your medical treatment. MyDirectives helps you create your own emergency medical care plan for your family and doctors so they can make decisions on your behalf".
Life and Death Planning: Low effort, High Reward. "Get Your Shit Together" Webresource
"There are a few simple things I wish I had taken care of before my life went sideways, like a will, living will, and some details jotted down. Should the ground fall out from under your feet—plan now for a softer landing. In fact, it's easy to finish the planning and basic papers your life needs.
In 2009 my husband was killed in an accident. In the following hours, weeks, and months I was shocked by the number of things we had left disorganized or ignored. Critical documents you can spend a fraction of the time doing now. Here are those core items, streamlined.
GYST™ now and breathe a huge sigh of relief. You can do it".
Advance Care Planning. Speak Up!
"Advance Care Planning is a process of reflection and communication. It is a time for you to reflect on your values and wishes, and to let people know what kind of health and personal care you would want in the future if you were unable to speak for yourself.
It means having discussions with family and friends, especially your Substitute Decision Maker – the person who will speak for you if you cannot speak for yourself. It may also include writing down your wishes, and talking with healthcare providers and financial or legal professionals"
Click on the above image to learn more.
The Paternalism Preference — Choosing Unshared Decision Making.
"Consent is not merely the granting of permission but an exercise in choosing, and choice requires disclosure of a certain amount of information. How much information is adequate? Rather tautologically, as much as necessary to decide: 'The scope of the physician's communications to the patient must be measured by the patient's need, and that need is whatever information is material to the decision'.”
The Art of Healing.
"As the parents of Lulu and Leo, we know that art and nature played a critical role in their short, beautiful lives and in the life of our surviving daughter, Nessie. We believe every child on the planet deserves the deep engagement with art, nature, and creativity that our children had, not simply for the sheer joy and excitement it brings children but for the powerful tool it can be. We have felt the critical importance of creativity as a healing force and want to ensure that these creative outlets are available to all children and communities facing adversity.
We created the Lulu & Leo Fund to inspire, engage, educate, heal and grow the hearts and minds of children facing hardships, giving them lifelong passion, skills and — most importantly — hope".
Grief Through a Child's Eyes.
Click on the above image to watch "Grief through a Child's Eyes" an original video that takes you inside a children's bereavement camp.