Myths about Palliative Care

It is so important to demystify the incredible scope and breadth of Palliative and end of life Care. For National Hospice Palliative Care Week in Canada (May 2nd- 8th), I am re-posting a great resource from CVH - an incredible source of evidence-informed Hospice Palliative Care resources for individuals, families, healthcare providers or volunteers serving anyone facing life-limiting illness, grief and bereavement. 

An infographic about 10 myths that are often encountered in Palliative Care (also available in French, Arabic, Brazilian Portuguese, Catalan, Chinese, Cree, Hebrew, Inuinnaqtun, Japanese, Portuguese, Spanish and Tagalog).

Source: Canadian Virtual Hospice

Demystifying Hospice Palliative Care is essential!

National Hospice Palliative Care Week in Canada is May 2nd-8th, 2021.

Proactive and equitable access to Hospice Palliative Care is not standard, with barriers (including a lack of education, funding and research) contributing to the myths that impact delivering high-quality person and family-centred collaborative care. Integrated support for loss, grief and bereavement is lacking.

Did you know....

-Between 62% and 89% of those who die could benefit from palliative care, including nearly everyone who does not die unexpectedly

- 51% of the children who died in 2012 only received Paediatric Palliative Care for the last 30 days of their lives

-62% of Canadians who received palliative care did so in an acute care hospital in their last month of life

-Few Canadians (15%) have early access to palliative care in the community

-80% of the time, palliative care was provided during admission was unplanned or through an emergency department  

-Canadians between the ages of 45 and 74 are more likely than younger adults and older seniors to receive palliative care

-There are ~88 residential hospices and the majority require a prognosis of <3 months to be admitted

Source: CHPCA Fact Sheet 2021 

For more information, please visit the Canadian Hospice Palliative Care Association

Thrilled to host "How We Talk About Grief" at gritLIT!

Am truly honoured to host “How We Talk About Grief” on behalf of The 100% Certainty Project. Death: Something to Talk About for gritLIT 2021. I am thrilled to meet both Dakshana Bascaramurty and Christa Couture and explore their experiences with loss and grief as we discuss their exquisite memoirs.

An all-too-familiar certainty, grief is an emotion that’s difficult for most of us to put into words. In This Is Not the End of Me, Dakshana Bascaramurty documents the final years of a husband and father diagnosed with terminal cancer at age 33. In How to Lose Everything, Christa Couture shares her own excruciating loss, including the amputation of her leg as a cure for bone cancer and the death of two children.

Join me on April 18th at 2pm as I ask these brilliant authors to discuss the challenges of talking and writing about grief and how the process of doing so helps with healing.

#gritLIT2021

April 16th is Advance Care Planning Day in Canada

April 16th is National Advance Care Planning Day in Canada, a day to promote conversations about your wishes and values for your future health and personal care in the event that you are unable to communicate for yourself. This year’s #ACPDay2021 is based on the theme "Advance Care Planning: An Essential Conversation for Everyone".

The ACP in Canada website - https://www.advancecareplanning.ca/acpday/ - features FREE downloadable resources, including posters and social media graphics for organizations and individuals across Canada to promote ACP.

Canadians have spoken, and although 80% of the population believes Advance Care Planning is important, less than 1 in 5 Canadians have an Advance Care Plan. Fortunately, the ACP website at www.advancecareplanning.ca is full of free information, tools, and conversation starters to help with starting the conversation. There are also links to provincial and territory-specific ACP resources across Canada.

How are you connecting with friends and family during these times? #ACPinCanada.

How Equity-Oriented is Palliative Care?

Join us for the free (online) Elizabeth J. Latimer Lecture in Palliative Care "How Equity-Oriented is Palliative Care" with the extraordinary Dr. Kelli Stajduhar.

The 17th Annual Innovations in Palliative Care Virtual Conference

Join us for the (online) 17th Annual Innovations in Palliative Care Virtual Conference, a collaboration between the Division of Palliative Care, Department of Family Medicine at McMaster University and Pallium Canada

Excited to be on Faculty for Learning Essential Approaches to Palliative Care (LEAP) McMaster

Excited to be on Faculty for this exciting collaboration. Join us for this Learning Essential Approaches to Palliative Care (#LEAP) #CPD!

Pallium Canada and the Division of Palliative Care, Department of Family Medicine at McMaster University have partnered to create a unique #online #learning opportunity for #healthcare professionals.

This is a unique #opportunity to continue learning about the #palliative care approach. The #workshop addresses contemporary topics of relevance to care providers across many care settings including #hospital, #community and #residential care, as well as special challenges encountered during transitions in care.

These #workshops are ideal for any health care professional (e.g. #Physician, #Nurse, #SocialWorker, #Pharmacist, etc.) who would like continued learning on the #PalliativeCare approach.

Session topics include:
- Recap of the Palliative Care Approach
- Unique Situations
- Transitions in Long-Term Care
- In-Depth Conversations
- Advanced Liver and Heart Diseases
- Kidney and Neurological Diseases

In recognition of the hard work of health care professionals throughout the #COVID19 pandemic, the price for these sessions has been reduced.

Visit: https://pallium.myshopify.com/collections/palliative-care-in-depth-workshop

C. Elizabeth Dougherty Consulting Newsletter Winter 2021

Honoured to share my Winter 2021 newsletter including resources for individuals and families of all ages facing a complex illness, from diagnosis through to bereavement. Grateful to also share undergraduate and graduate Social Work education, along with medical education and interprofessional education for healthcare providers demystifying palliative care.

A Conversation... About Advance Care Planning, Life, Love, Loss & Legacy

SO grateful to have this conversation about Advance Care Planning, Life, Love, Loss & Legacy with Laurel Gillespie at Advance Care Planning Canada with the Canadian Hospice Palliative Care Association.

Creating safe spaces for people to have informed conversations about wishes and values is so important. Exploring and honouring connections and meaning for any individual and family in the face of illness and loss can be invaluable.

Please join us for a discussion about these invaluable conversations, while also exploring ways to connect with healthcare providers, and most certainly, with those we love.

Consider who, and what, gives your life meaning? Not just at the end of life, but now. It’s never too soon, but it can be too late.

Click here to listen to this episode of “A Conversation With…”

Today is Children's Grief Awareness Day (#GGAD)

CGAD is designed to help us all become more aware of the needs of grieving children teens and families — and of the benefits they obtain through the support of others. Children's Grief Awareness Day is an opportunity to make sure that grieving children receive the support they need.

Before they graduate from high school, one child out of every 20 children will have a parent die - and that number doesn't include those who experience the death of a brother or sister, a close grandparent, an aunt or uncle, or friend.

Grieving children often feel set apart, different from their peers, alone and not understood. Every school and every community has children who have experienced some type of loss. Even if they keep their loss and experience to themselves, there are many children who are grieving among us.

These children can be helped to not feel so alone. Children and adults together can show their support for grieving children and show their awareness of what grieving children might be going through by participating in Children's Grief Awareness Day.

Source: CGAD. For more information or resources, visit: https://www.childrensgriefawarenessday.org/cgad2/about/index.shtml

DID YOU KNOW???? On CGAD, the CN Tower / La Tour CN will be illuminated in blue to raise awareness of this important issue

Free M.A.i.D Bereavement Support Group (online)

This Virtual MAiD Bereavement Support Group is free and offered to anyone (+18yo) in Ontario following the death of a loved one via MAiD. While we wish we could offer this group in-person, the support will now be provided online in light of COVID-19 restrictions.

Am grateful to be part of the development team and one of the co-facilitators for this group. This group is being co-facilitated by myself and a spiritual care provider and is limited in that we can only offer unilingual support (English speaking). We also appreciate this means that someone must have access to a phone or WiFi and understand that not everyone has that luxury.

People can self-refer. The program will run for 4 weeks starting November 25th. We intentionally take a break over the holidays and reconvene to offer the remaining 4 weeks in January to continue to process and honour the range of loss experiences and explore compassionately moving forward.

The contact information for self-referral is on the attached poster. Spaces are limited. For more information, call (905) 521 2100 x73621 or email adras@hhsc.ca

November 17th is National Bereavement Day 2020 in Canada

Grief and bereavement support is an essential element of care for individuals and families of all ages.

This year, the Canadian Hospice Palliative Care Association (CHPCA) invites Canadians on a shared journey that fosters compassion and encourages them to cope with their grief by supporting each other through living and grieving. We might be physically distant, but grief brings us together. We learn to live with the loss and grief in ways that maintain and honour our bond with the person who died but don’t limit our capacity for joy, pleasure and a meaningful life. At this trying time, we might be physically distant, but we are emotionally, spiritually and socially connected through our grief. Source: CHPCA

For more information, visit: CHPCA

In support of Movember, a free webinar demystifying Advance Care Planning for Men with Prostate Cancer

In support of Movember Canada & TrueNTH, am sharing a free webinar demystifying Advance Care Planning for Men with Prostate Cancer.

Facing prostate cancer is difficult enough. But advance care planning (ACP) can give your loved ones the confidence and peace of mind to make healthcare decisions for you if you are unable to communicate for yourself. This webinar will provide information about why ACP is important, and a step-by-step guide to advance care planning.

The purpose of this workshop is to:
- Provide an overview of ACP
- Foster understanding as to why ACP is important for anyone facing prostate cancer,
- Help men with prostate cancer, their partners and families learn the steps involved in the ACP process, and how to start these conversations,
- Explore some free ACP resources from Advance Care Planning Canada

The free webinar can be accessed via https://vimeo.com/189996475

C. Elizabeth Dougherty Consulting 2020 Newsletter

Living with Added Uncertainty and Isolation

Due to COVID-19, many people are experiencing an additional sense of grief and loss when faced with a cancer diagnosis. How can people with cancer and their loved ones tend to these difficult feelings during this time? Honoured to have offered Living with Added Uncertainty and Isolation for the CANCER AND COVID-19 WEBINAR SERIES for the Canadian Cancer Society.

In this free webinar, we  discuss how COVID-19 has impacted the experience of uncertainty and isolation for people living with cancer and their loved ones, along with some strategies to address thoughts and feelings and some available free resources.

FREE Advance Care Planning Webinar

This FREE webinar will demystify Advance Care Planning in Canada and explore the stigma alongside some common barriers. We will dive into better understanding of Advance Care Planning and why it is relevant for EVERYONE, especially now. Lastly, free national resources will be provided to assist in beginning these essential conversations. 

CLICK HERE to watch the full presentation.

The Saturation of Grief in the time of COVID, Honouring Loss and Exploring Healing

Honoured to present "The Saturation of Grief in the time of COVID, Honouring Loss and Exploring Healing" for Ethics and Diversity Grand Rounds organized by Ethics & Care Ecologies Program at Hamilton Health Sciences with Dr. Andrea Frolic.

Exploring universal yet unique experiences of loss and grief in healthcare, alongside the stigma, and creating brave spaces for healing is essential - for ALL involved - especially now.

Loss in the time of COVID: Exploring the Impact of Grief in the Year of the Nurse

I am deeply grateful to Nurses everywhere - for all that you do for so many and am truly honoured to join the compassionate clinicians in the Palliative Care Nurses Interest Group for the Registered Nurses'​ Association of Ontario (RNAO) virtual AGM on June 11th 2020 to present “Loss in the time of COVID: Exploring the Impact of Grief in the Year of the Nurse”.

Support for Grieving Young Adults (ages 18-30)

Actively Moving Forward® (AMF) is a network created in response to the needs of grieving young adults (ages 18-30) and is connecting, supporting, empowering grieving young adults to “actively move forward” in memory of their person. 

Now, a FREE AMF app offers new ways to connect!

“You’ll have full access to facilitated virtual support groups, tools, resources, reading, videos, supportive quotes, community engagement via direct messaging, group chats, posts and interactive comment boards. Group members may be tagged by person in their life that died so that members grieving a similar death loss can easily find each other.” 

Time to connect on a whole new level. Deepen friendships, engage with groups, simplified chats, find events, webinars and a host of other valuable and helpful resources.

To register for this app and access FREE bereavement support, visit Actively Moving Forward® 

Source: Actively Moving Forward - AMF, a HealGrief program

Trusting that even the longest, hardest endings lead to brand new mornings.

Sharing the beautiful words and artwork from Morgan Harper Nichols.

"You will grow how you were meant to. One morning you will wake up and realize that even though so many things aren’t the same anymore, there is still more in store. Because knowing 'there is more in store' doesn’t mean believing that everything will be easy, it means trusting that even the longest, hardest endings lead to brand new mornings.

In this life you will have moments that leave you speechless. You will look to the one you love and wonder, how on earth did you get to live this life. You will also have nights that leave you restless where you are left to ask, what will it look like to survive. And you will also have a billion moments in between. You will weave in and out of beginnings and endings and somehow, through it all, you will end up growing in the way you were meant to. You will be tender and you will be strong and you will be glad you lived to see beautiful things flourish, even though they took so long. You will heal along the journey. You will find: you were always learning. Strength was rising up within you. You bloomed how you were meant to. MHN"