Awareness

About Childhood Grief FREE Resource

About Childhood Grief

“The death of a family member, friend or other significant person is a lifelong loss for children. It is normal for children to miss the person who died and to experience grief that might come and go with different levels of intensity for some time after the death. It can be challenging to parents and caregivers to know what to do for, what to say to and how to help children who are obviously hurting. Here are a few suggestions about how to be helpful to a grieving child based on research and practice among children’s grief support professionals and volunteers. It is important to note that grief reactions in children are varied, wide ranging and unique to each individual.” 

The following suggestions will help guide you as you seek to be provide understanding and compassion to children living with grief:

  • Grief is a normal reaction for children to the death of someone significant

  • Children need to know the truth. Most parents and caregivers would agree that they would prefer that their children not have to deal with the difficult truths that might accompany a death

  • Each child’s grief is as unique to him or her as was their relationship with the deceased

  • Grieving children often feel alone and misunderstood

  • Children will experience grief over the death of significant people at different times throughout their lives

  • Grieving children often experience personal growth as a result of their loss

  • Grieving children feel less alone when they are with other children who have experienced the death of a significant person and when they have loving, consistent adults in their lives

  • Knowledge is Power

Source “About Childhood Grief” via NACG

FREE Individual Student Bereavement Plan

Returning to school can be a time of tremendous grief bursts - both expected and unexpected: from completing emergency contact forms after a parent/caregiver has died (is dying) or absent in any capacity; seeing families together when a parent or sibling is in hospital, hospice or is no longer present; witnessing the range of emotions when people talk about summer experiences filled with joy and connection when grief, loss, an accident, illness and absence has been their experience instead… While not readily visible, grief will continue to influence the life of a student impacted by loss (as they live with navigating the ongoing impact of grief & grieving).

You can access the FREE Individual Student Bereavement Plan via NACG

“This document is a resource for supporting students returning to school after they have experienced the death of a significant person in their lives. When a student returns to school, they may feel alone and challenged by the task of engaging with their daily routine. Schools are in a unique position to provide support for students with thoughtful plans specific to the individual’s needs. Students grieve developmentally, and their needs are unique and changing throughout the days, months, and years ahead. Those students that need and receive grief support have improved outcomes socially, emotionally, and academically.” Source “Individual Student Bereavement Plan”

Source: NACG

Undergraduate Medical Education: From White Coat to Blue Gown

I was incredibly honoured to once again facilitate this annual lecture in memory of Dr. Barbara Tatham at the Michael G. DeGroote School of Medicine at McMaster University.

Barbara was a medical student at McMaster University and went on to become an innovative Family and Emergency Room Physician and collaborative Medical Educator. After enduring a courageous battle with cancer, at the age of 32, Barbara died on October 16, 2019, a few short weeks after delivering her final extraordinary undergraduate medical education lecture, Barbara left us with her last lecture, a precious legacy, recorded at McMaster, selflessly demonstrating her indomitable spirit and compassion.

We have been fortunate to maintain contact with Barbara’s family since 2019. Their hope is that medical students while remembering Barbara’s empathy, will consider their own humanity as they go on to care for patients, families and themselves.

FREE Death Café at McMaster University: August 9th (6-8pm)

I am honoured to facilitate a FREE Death Café on Wednesday August 9th (6-8pm) at the David Braley Health Sciences Centre, McMaster University on behalf of The 100% Certainty Project. Death: Something to Talk About.

Registration is required for this FREE Death Café via Eventbrite at: https://www.eventbrite.ca/e/death-cafe-tickets-668976405437

Please note: Death Café is an international movement where people, often strangers, gather to eat, drink tea and discuss death. The objective is 'to increase awareness of death with a view to helping people make the most of their (finite) lives’.

At Death Café, you can expect a group directed discussion of death with no agenda, objectives or themes. It is a discussion group. Please note that Death Café is NOT a grief support group, nor is this a grief counselling session.

Death Café is a respectful, public event where people of all communities and belief systems are welcome to have discussions about death. Interesting conversation is guaranteed! For more information, please visit Death Café https://deathcafe.com/

FREE Death Café on Wednesday June 28th at McMaster University

I am honoured to facilitate this FREE Death Café on Wednesday June 28th (6-8pm) at the David Braley Health Sciences Centre, McMaster University on behalf of The 100% Certainty Project. Death: Something to Talk About.

We will highlight the articles, “You May Want to Marry My Husband” (written by Amy Krouse Rosenthal, 2017) and “My Wife Said You May Want to Marry Me” (written by Jason B. Rosenthal, 2018), alongside the 2018 TED Talk “The journey through loss and Grief” and 2020 book, “My Wife Said You May Want to Marry Me” by Jason, (named one of time’s best new books). 

This event is featuring “My Wife Said You May Want to Marry Me”, an extraordinary 2023 book selection for The 100% Certainty Project. Death: Something to Talk About. The book “is an inspiring memoir of life, love, loss, and new beginnings by the widower of bestselling children’s author and filmmaker Amy Krouse Rosenthal, whose last of act of love before her death was setting the stage for her husband’s life without her in a column in the New York Times.” Source: https://www.jasonbrosenthal.com/books 

Registration is required for this FREE Death Café on Wednesday June 28th (6-8pm) via Eventbrite at: https://www.eventbrite.ca/e/death-cafe-tickets-657227203257?utm_source=eventbrite&utm_medium=email&utm_content=follow_notification&utm_campaign=following_published_event&utm_term=Death+Cafe&aff=ebemoffollowpublishemail 

Please note: Death Café is an international movement where people, often strangers, gather to eat, drink tea and discuss death. The objective is 'to increase awareness of death with a view to helping people make the most of their (finite) lives’.

At Death Café, you can expect a group directed discussion of death with no agenda, objectives or themes. It is a discussion group. Please note that Death Café is NOT a grief support group, nor is this a grief counselling session. 

Death Café is a respectful, public event where people of all communities and belief systems are welcome to have discussions about death. Interesting conversation is guaranteed! For more information, please visit Death Café. https://deathcafe.com/

It is National Hospice Palliative Care Week in Canada

The first full week of May marks National Hospice Palliative Care Week in Canada. Palliative care is person-centered care. That means, in part, that wherever there is a person with a life-limiting illness, palliative care can be provided. If someone is facing significant health-related suffering because of a life-limiting illness, palliative care can help regardless of the setting of care, regardless of a person’s illness or prognosis, regardless of their postal code. Palliative care is an approach that aims to alleviate the suffering of people facing a life-limiting illness. It can be provided in any setting – from hospice, to long-term care, to hospital, to home.

While access to palliative care has improved over recent years, the latest data shows that only 58% of Canadians who died in 2021-2022 received palliative care, usually in a hospital. The “Palliative Care Everywhere” campaign highlights that there are no limits on where a palliative approach to care can be provided and reminds us that wherever people face life-limiting illnesses, end-of-life, and grief, there must also be a place for palliative care.

"This week, we celebrate the indispensable and compassionate care provided by health care workers, volunteers, unpaid caregivers and many others across Canada. The impact of palliative care on a person’s quality of life and on their family is profoundly meaningful, and every person with a life-limiting illness deserves to receive this level of care," said Laurel Gillespie, CEO of CHPCA. “Sadly, less than 60% of Canadians who died last year received care from the discipline that specializes, in part, in caring for the dying. It is time for everyone in Canada to come together to build a future where ‘Palliative Care Everywhere’ is true in every postal code.” Source: CHPCA

Planning for My Care: Proud, Prepared & Protected

April 16th is National Advance Care Planning Day in Canada

Planning for My Care part of Proud, Prepared & Protected is a FREE booklet focusing on care conversations 2SLGBTQ+ people and healthcare providers to start conversations about values, wishes and concerns to help identify who you would want to make decisions, your Substitute Decision Maker (SDM) on your behalf should you not be able to make decisions for yourself. 

Access FREE via https://www.virtualhospice.ca/2SLGBTQ/media/igkp01nf/2slgbtq-planning-for-my-care.pdf 

Many who are 2SLGBTQ+ have experienced or witnessed discrimination and ignorance in a healthcare setting. You may have received inappropriate care or, even worse, been denied care. Some healthcare workers are not aware of the challenges the 2SLGBTQ+ communities face. 

This document, focusing on care conversations for Two-Spirit and Lesbian, Gay, Bisexual, Trans, Queer, and all sexual and gender-diverse people, is intended to help you think about what is important to you, concerns you might have, and who you would want to make decisions for you if a time comes when you can’t make decisions for yourself. 

Consider giving a copy of this document to the important people in your life, and sharing this information with healthcare providers. Take it with you when you attend appointments, call 911, visit the emergency department, or access other healthcare services. If your province or territory has a process for documenting your wishes for care, ensure this information is included on those documents and kept in the same place.

Source: Canadian Virtual Hospice

ADDITIONAL RESOURCES:

For more information on advanced illness, advance care planning, palliative care, end-of-life care and grief, please visit: 

Canadian Virtual Hospice www.virtualhospice.ca 

Advance Care Planning Canada values a free, accessible and open shared knowledge amongst the community. The website provides you with all the necessary tools to inform yourself on the most recent advanced care planning updates and developments. For more information and FREE resources, visist: https://www.advancecareplanning.ca/

FREE Advance Care Planning (ACP) workbooks

April 16th is National Advance Care Planning Day in Canada

“If Not You, Who? Who would you trust to make your healthcare decisions? Planning for your future healthcare needs is important. So, we’re asking: Do you know what would happen if you couldn’t speak for yourself? Who would you trust to make those #healthcare decisions for you? 

You have the power to choose who that person is. They can be a family member, a friend, or anyone in your life that you trust to make the kinds of healthcare decisions you would want. 

  • Think about who you would trust with making those important decisions for you. 

  • Think about what matters most in your life and how that might help guide someone in making the kinds of healthcare decisions you would want.  

  • The best time to think about this is now when you can speak for yourself. We have useful guides to help you along the way. 

Choosing a Substitute Decision-Maker (SDM)

Advance Care Planning policies can vary dependent on your province or territory. In order to ensure your end of life wishes are honoured it is crucial to have an understanding of your province or territory policies. This includes understanding what your #rights and #privileges are, as well as understanding the laws and regulations regarding end of life care, specific to your province or territory. While creating your advance care plan it is also important to make sure that you are using the correct documents for your province or territory. 

  • Who do you trust most to make decisions for your health care that follow your wishes?

  • Would that person be comfortable with making important decisions about your health quickly or in an emergency?

  • Have you spoken to them about what matters most in your life? When someone knows what you value most in your life, they can make more informed decisions about your health care.

  • What Matters Most? What does a good day look like for you?

  • What situations do you find difficult?

  • What gives you strength in difficult times?

  • What spiritual, cultural or religious beliefs, practices, or ceremonies are important to you?

  • What do you value more: the possibility of a longer life, or the possibility of a better quality of life? 

These questions can help guide you and your substitute decision-maker and assist them to prioritize what matters most to you when weighing care options.

April 16th is Advance Care Planning Day. So, ask yourself: If not you, who?” 

Source: Advance Care Planning Canada 

There are multiple FREE Advance Care Planning (ACP) workbooks, toolkits and guides specifically created to follow the provincial/territorial requirements for your advance care plan. Visit for FREE FREE Advance Care Planning (ACP) resources across Canada https://www.advancecareplanning.ca/acp-across-canada/

April 16th is National Advance Care Planning Day in Canada.

It’s about conversations. It’s about wishes. It’s how we care for each other.

Advance Care Planning is about having conversations with family and friends, especially your Substitute Decision Maker – the person who will speak for you if you cannot speak for yourself in case of a health emergency. It may also include writing down your wishes, and talking with healthcare providers and financial or legal professionals.

Advance care planning is a process of reflection and communication, a time for you to reflect on your values and wishes, and to let others know your future health and personal care preferences in the event that you are unable to consent or refuse treatment or other care.

  1. Think about what is most important to you – your values, wishes and beliefs.

  2. Learn about your overall health. This may include current conditions you want to better understand.

  3. Decide on your Substitute Decision Maker(s), one or more people who are willing and able to speak, for you if you cannot speak for yourself.

  4. Talk about your values, beliefs and wishes with your Substitute Decision Maker(s), family, friends and health care providers.

  5. Record your values, wishes and beliefs in your Advance Care Planning Guide, in a letter, poem, video or audio recording.

Source: Advance Care Planning Canada

ADDITIONAL RESOURCES:

For more information on advanced illness, advance care planning, palliative care, end-of-life care and grief, please visit: 

Canadian Virtual Hospice www.virtualhospice.ca 

Living My Culture www.livingmyculture.ca 

Advance Care Planning Canada values a free, accessible and open shared knowledge amongst the community. The website provides you with all the necessary tools to inform yourself on the most recent advanced care planning updates and developments. For more information and FREE resources, visit: https://www.advancecareplanning.ca/

National Caregiver Day is the first Tuesday of April in Canada.

“More than 8 million family and friend caregivers in Canada are providing care in the home. Most caregivers will feel unprepared and overwhelmed at some point. If you are caring for someone who is ill or living with mobility challenges, these modules are for you.

Access them anytime of the day or night, as many times as you need, and at no cost (FREE) via https://www.virtualhospice.ca/caregiving/

These modules include useful information, strategies, and suggestions for preparing for and providing care as illness advances:

-Strategiesfor difficult conversations

-Video demonstrations of caregiving tasks 

-Guidance for recognizing and managing symptoms

-Suggestions for accessing programs and services

-Ways to care for yourself

Content is arranged in chapters and pages. Click a Chapter to see the pages and topics covered. You can move through the module pages using the list on the left-hand side or using the arrows at the bottom of the page. To return to the home page click the logo at the top left of the screen. Some modules include video clips showing how to do caregiving tasks or people sharing their experiences.”

Source: Canadian Virtual Hospice 

If you have questions, email info@virtualhospice.ca

#NationalCaregiverDay #CelebrateACaregiver

Loss in the Time of COVID: Exploring the Impact of Grief

Honoured to deliver Loss in the Time of COVID: Exploring the Impact of Grief as the Keynote address at Trillium Health Partners in support of National Hospice Palliative Care Week in Canada.

My sincere gratitude to everyone who joined our discussion via Zoom, for sharing time, reflections and energy - and for acknowledging the impact of trauma, loss and grief for healthcare providers as we continue to serve so many facing trauma, loss and grief during the pandemic.

Exploring the Role of Social Work in Palliative Care

So grateful to speak with my friends and colleagues Drs. Hsien Seow and Sammy Winemaker on their podcast The Waiting Room Revolution.

We explored the role of Social Work in Palliative Care, the value of proactive and compassionate person and family-centred support following diagnosis of any serious illness, exploring loss and grief through to end-of-life and bereavement, creating space for essential conversations, and the healing power of silence.

Follow their podcast for essential tips and tools to navigate the healthcare system following diagnosis of a serious illness. To listen to our conversation, click here

The ARQ of Grief Support

The ARQ of Grief Support:

  1. Awareness

  2. Reflection

  3. Questions

The ARQ of Grief Support via NACG, The Dougy Center & KinderCare is a framework you can use to create meaningful, supportive interactions with children, teens and adults facing grief, loss & grieving


Source: https://childrengrieve.org/12-resource/309-resources-2

Join the movement to #UnderstandGrief

Join the #UnderstandGrief movement! Here's how:

1. Advocate that grief is not a mental disorder; our social and cultural context impacts how we grieve. Question the narrative of “mental disorders” and consider all the factors that can contribute to how a person responds to the death of someone in their lives.

2. Consider the language you use and how it can impact people. People who are grieving often receive patronizing responses to “move on” or “find closure” when what they need most is to feel understood.

3. Educate others about being grief-informed. Share the 10 core principles of being grief-informed.

4. Broaden the dialogue about the need for diversity and inclusivity in grief research and support. We need to reach beyond limited and narrow perspectives to understand and support how grief is experienced by people of different beliefs, cultures, ethnicities, backgrounds, abilities, and experiences.

5. Challenge myths about grief. Grief doesn’t follow an orderly path. When someone is grieving, don’t impose expectations on them about how they should feel or respond, or how long their grief should last. Every experience of loss is different.

6. Acknowledge and address the injustices of labels. Rather than labeling people who are grieving with a mental disorder, consider framing the challenges we face when we’re grieving as just that: challenges we experience when coping with the death of someone in our lives.

7. Recognize and acknowledge that every experience of loss is a unique experience. People will likely respond to the death of each person in their life differently because every relationship is unique. 

8. Strengthen relational connections. We need connections with others who are understanding and compassionate, especially when difficult and painful things happen.

9. Honour lived experience. To honour the lived experience of others involves offering the gift of nonjudgmental listening, open mindedness, and support.

10. Be compassionate with yourself and with others. One of the ways we can “walk our talk” is to demonstrate the same compassion toward ourselves that we hope others will have for themselves, particularly when we’re grieving.

Via The Dougy Center

C. Elizabeth Dougherty Consulting - Fall 2021 Newsletter

I am honoured to share my Fall 2021 newsletter including resources for individuals and families of all ages facing a complex illness, following diagnosis through to bereavement. I am also grateful to also share my teaching experiences including: undergraduate and graduate Social Work Education; undergraduate Medical Education; and Interprofessional Education for healthcare providers exploring informed conversations, honouring person and family-centred care, demystifying grief, and advocating for palliative care.

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Myths about Palliative Care

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It is so important to demystify the incredible scope and breadth of Palliative and end of life Care. For National Hospice Palliative Care Week in Canada (May 2nd- 8th), I am re-posting a great resource from CVH - an incredible source of evidence-informed Hospice Palliative Care resources for individuals, families, healthcare providers or volunteers serving anyone facing life-limiting illness, grief and bereavement. 

An infographic about 10 myths that are often encountered in Palliative Care (also available in French, Arabic, Brazilian Portuguese, Catalan, Chinese, Cree, Hebrew, Inuinnaqtun, Japanese, Portuguese, Spanish and Tagalog).

Source: Canadian Virtual Hospice

Demystifying Hospice Palliative Care is essential!

National Hospice Palliative Care Week in Canada is May 2nd-8th, 2021.

Proactive and equitable access to Hospice Palliative Care is not standard, with barriers (including a lack of education, funding and research) contributing to the myths that impact delivering high-quality person and family-centred collaborative care. Integrated support for loss, grief and bereavement is lacking.

Did you know....

-Between 62% and 89% of those who die could benefit from palliative care, including nearly everyone who does not die unexpectedly

- 51% of the children who died in 2012 only received Paediatric Palliative Care for the last 30 days of their lives

-62% of Canadians who received palliative care did so in an acute care hospital in their last month of life

-Few Canadians (15%) have early access to palliative care in the community

-80% of the time, palliative care was provided during admission was unplanned or through an emergency department  

-Canadians between the ages of 45 and 74 are more likely than younger adults and older seniors to receive palliative care

-There are ~88 residential hospices and the majority require a prognosis of <3 months to be admitted

Source: CHPCA Fact Sheet 2021 

For more information, please visit the Canadian Hospice Palliative Care Association

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Thrilled to host "How We Talk About Grief" at gritLIT!

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Am truly honoured to host “How We Talk About Grief” on behalf of The 100% Certainty Project. Death: Something to Talk About for gritLIT 2021. I am thrilled to meet both Dakshana Bascaramurty and Christa Couture and explore their experiences with loss and grief as we discuss their exquisite memoirs.

An all-too-familiar certainty, grief is an emotion that’s difficult for most of us to put into words. In This Is Not the End of Me, Dakshana Bascaramurty documents the final years of a husband and father diagnosed with terminal cancer at age 33. In How to Lose Everything, Christa Couture shares her own excruciating loss, including the amputation of her leg as a cure for bone cancer and the death of two children.

Join me on April 18th at 2pm as I ask these brilliant authors to discuss the challenges of talking and writing about grief and how the process of doing so helps with healing.

#gritLIT2021

April 16th is Advance Care Planning Day in Canada

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April 16th is National Advance Care Planning Day in Canada, a day to promote conversations about your wishes and values for your future health and personal care in the event that you are unable to communicate for yourself. This year’s #ACPDay2021 is based on the theme "Advance Care Planning: An Essential Conversation for Everyone".

The ACP in Canada website - https://www.advancecareplanning.ca/acpday/ - features FREE downloadable resources, including posters and social media graphics for organizations and individuals across Canada to promote ACP.

Canadians have spoken, and although 80% of the population believes Advance Care Planning is important, less than 1 in 5 Canadians have an Advance Care Plan. Fortunately, the ACP website at www.advancecareplanning.ca is full of free information, tools, and conversation starters to help with starting the conversation. There are also links to provincial and territory-specific ACP resources across Canada.

How are you connecting with friends and family during these times? #ACPinCanada.

Excited to be on Faculty for Learning Essential Approaches to Palliative Care (LEAP) McMaster

Excited to be on Faculty for this exciting collaboration. Join us for this Learning Essential Approaches to Palliative Care (#LEAP) #CPD!

Pallium Canada and the Division of Palliative Care, Department of Family Medicine at McMaster University have partnered to create a unique #online #learning opportunity for #healthcare professionals.

This is a unique #opportunity to continue learning about the #palliative care approach. The #workshop addresses contemporary topics of relevance to care providers across many care settings including #hospital, #community and #residential care, as well as special challenges encountered during transitions in care.

These #workshops are ideal for any health care professional (e.g. #Physician, #Nurse, #SocialWorker, #Pharmacist, etc.) who would like continued learning on the #PalliativeCare approach.

Session topics include:
- Recap of the Palliative Care Approach
- Unique Situations
- Transitions in Long-Term Care
- In-Depth Conversations
- Advanced Liver and Heart Diseases
- Kidney and Neurological Diseases

In recognition of the hard work of health care professionals throughout the #COVID19 pandemic, the price for these sessions has been reduced.

Visit: https://pallium.myshopify.com/collections/palliative-care-in-depth-workshop