"My Marriage Didn’t End When I Became a Widow". ~ Dr. Lucy Kalanithi

"One night recently, alone in bed, I read “A Grief Observed” by C.­S. Lewis, and I came across the observation that “bereavement is not the truncation of married love but one of its regular phases.” He writes that “what we want is to live our marriage well and faithfully through that phase, too.” Yes, I breathed. Bereavement is more than learning to separate from a spouse. Though I can no longer comfort Paul, the other vows I made on our wedding day — to love Paul, to honor and keep him — stretch well beyond death. The commitment and loyalty, my desire to do right by him, especially as I raise our daughter, will never end". 

Lucy Kalanithi is an internist at Stanford University’s Clinical Excellence Research Center. She wrote the epilogue to her late husband Paul Kalanithi’s forthcoming book, “When Breath Becomes Air.”

Explaining Cremation to Kids.

"Of course, this is a tough concept for kids this age to comprehend but it's much worse to shield them from this ritual".

How one couple’s loss led to a push for psychological care for kids with cancer.

"The standards say families should be educated early on about palliative care and its role in helping to “reduce suffering throughout the disease process.” And they say children with cancer should receive “developmentally appropriate” information to prepare them for the treatments and procedures they will undergo".

Supporting Grieving Preschoolers. The Dougy Centre.

"Explaining death to a young child can feel overwhelming and intimidating. These tips may help you navigate how to talk with and support grieving preschoolers after a death". 

Patients aren’t told that death is near until too late. We can do better.

"Oncologists, cardiologists, and other specialists can often predict a patient’s rate of decline based on a specific disease, Obermeyer said. But patients, particularly those who are elderly, often suffer from more than one serious illness that make it more difficult to predict when they’re near death. So a pulmonologist might treat someone’s pneumonia, for instance, without recognizing it signals a broader decline".

"A parting lesson from my parents". ~Andrew Dreyfus

"As I have become more involved with this work, I have wondered whether the CEO of a large health plan is the right person to talk about end-of-life care. But I only have to remember how important this issue was to my brother and my parents to realize that — in this case at least — my personal experience should inform my professional actions. Everyone, regardless of economic, cultural, racial, or geographic differences, must have their choices and values heard and respected. Everyone deserves the chance to live the best life possible, to the very end".

Op-Ed 'I have terminal cancer. And I'm dying in a yearish.'

"I understand that my infinitesimally tiny piece in all this is coming to a close. Letting go will be difficult, but death has its own clock. So I will take solace in the idea that, once gone, I may come to occupy a small space in the hearts of the people who loved me most. And perhaps from there, I will be a source of a few simple reminders: Time is limited. Life is miraculous. And we are beautiful".

The Difference Between Empathy and Compassion Is Everything.

"Empathy is a gateway to compassion. It’s understanding how someone feels, and trying to imagine how that might feel for you — it’s a mode of relating. Compassion takes it further. It’s feeling what that person is feeling, holding it, accepting it, and taking some kind of action".

Dignity, Respect and Choice: Advance Care Planning for End of Life for People with Mental Illness.

"Dignity, Respect and Choice: Advance Care Planning for End of Life for People with Mental Illness is a two part resource that will help support people with mental illness, their families and carers, and health professionals with the complex issues which might arise around Advance Care Planning for End of Life".

"You don't get over bereavement, you get on with it": Mumsnet.

"Have the boys 'got over the worst of it'? Who knows? We take every day as it comes. We are on a journey that takes us on a bumpy and unpredictable ride, with little in the way of helpful signage. Just because we have faced a huge trauma, does not mean that we are exempt from facing further difficulties en route".

Words to Live By...

"There’s an irony about end-of-life conversations. When done correctly, they’re really not about the end at all. In fact, they are probably more about life than any other conversation you’ll ever have".

The Year I Ran Away from Christmas: A Mother’s Perspective on Grief and the Holidays.

"I have no need to run away during the holidays anymore. The other day my daughter, now a young woman, reminded me that Christmas is her favourite time of the year. I smiled and said, 'It’s mine too’."

Click the image above to read more about Judy's experience.

Getting through the holidays.

"The pressures around the holidays can be even more challenging after the death of a family member".  

Click on the above image for tips that may help, as well as a Holiday Plan Worksheet to provide some guidance.

How not to say the wrong thing.

“Draw a circle. This is the center ring. In it, put the name of the person at the center of the current trauma... Now draw a larger circle around the first one. In that ring put the name of the person next closest to the trauma... Repeat the process as many times as you need to. In each larger ring put the next closest people. Parents and children before more distant relatives. Intimate friends in smaller rings, less intimate friends in larger ones. When you are done you have a Kvetching Order.

Almost nobody would complain to the patient about how rotten she looks. Almost no one would say that looking at her makes them think of the fragility of life and their own closeness to death. In other words, we know enough not to dump into the center ring. Ring Theory merely expands that intuition and makes it more concrete: Don't just avoid dumping into the center ring, avoid dumping into any ring smaller than your own.

Remember, you can say whatever you want if you just wait until you're talking to someone in a larger ring than yours.

And don't worry. You'll get your turn in the center ring. You can count on that".

What Would You Write If You Knew You Were Dying?

This talk was given at a local TEDx event, produced independently of the TED Conferences. Writing for the future. Recording conversations Rachel has a passion for honest conversations, and recognises the precious and precarious nature of life. She supports families when an adult develops cancer and helps those at the end of life to tell their story.

"When life runs out of tomorrow's, what you realize you've got is today" ~ Rachel L. Smith

Before the tomorrow's run out, use this opportunity today to think about what you will you say to your loved ones... And then say it...

Good Grief: Healthy Ways To Help A Child Mourn Their Sibling. ~Crossroads Hospice

"Few things are as powerful as the bond between brothers and sisters. The connection can often seem unbreakable, until tested by tragedy. Without a doubt, when a child loses a sibling, it can prove a very difficult journey. But with love and support, a child can weather this journey in time. 

A guiding presence ensures they process and mourn in a healthy way. While each child’s needs are unique, all parents and guardians can keep these tips in mind when discussing the loss of their sibling".

Click on the photo to access resources on this topic.

Never Bottle Things Up. ~Lily's Story

"Lily Nash's mum, Claire, died only four months ago from breast cancer. Since then, Lily, aged 10, has been meeting with Esther Gwynne once a week for bereavement counselling”.

 

Click on Lily's photo to read more as she shares her story... 

Grief and Mourning WebResource.

“An important question to consider is this: If we can’t deal with our fears of death, living in the background of our lives, how can we live fully in life? This quote explains it well. 

‘Normally we do not like to think about death. We would rather think about life. Why reflect on death? When you start preparing for death you soon realize that you must look into your life now… and come to face the truth of your self. Death is like a mirror in which the true meaning of life is reflected’ ~Sogyal Rinpoche

Through tools, resources, information and perspectives, GriefandMourning.com assists open-hearted and open-minded people in living a richer, satisfying and more fulfilling life.

GriefandMourning.com caters to all humans, regardless of background. Its views are non-denominational in nature, and are considered to be perspectives only. All perspectives welcome, as long as they empower and contribute in a positive way”.

Courageous Parents Network. An Invaluable Peer Community. Webresource.

"The mission and goals of Courageous Parents Network originate in my experience parenting my daughter Cameron following her diagnosis of Tay-Sachs at the age of six-months. Tay-Sachs is a rare and incurable genetic illness that always ends in early childhood death... But, in its way, it made everything that followed possible. 

We did more than survive. Despite the profound sadness of watching our beautiful daughter lose all cognitive and physical abilities, Charlie and I were able to live fully into her short life. Despite the fear we had of losing her, we were prepared to accept, face and allow her pending death. And despite the Whoosh that poured from our life and our home when we watched her die, we were able to heal and, in time, emerge from the dark fog of grief that surrounded our family.

Courageous Parents Network is about bringing these phenomena to other families who are caring for children with serious illness. It is about providing parents with the skills, tools and virtual support they need to cope and adapt during their child’s illness journey so as to make the impossible possible".

Toward Evidence-Based End of Life Care. ~NEJM

"The disquieting patterns of end-of-life care in the United States have been well documented. In the last month of life, one in two Medicare beneficiaries visits an emergency department, one in three is admitted to an intensive care unit, and one in five has inpatient surgery. But one of the most sobering facts is that no current policy or practice designed to improve care for millions of dying Americans is backed by a fraction of the evidence that the Food and Drug Administration would require to approve even a relatively innocuous drug".