Awareness

Free Family Event Celebrating Life, Death and Meaningful Connections

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Grief and Loss impacts Everyone.

Am honoured to co-host and co-facilitate this free public event. In support of Children's Grief Awareness Day and National Bereavement Day, "The 100% Certainty Project – Death: Something to Talk About" is hosting a FREE public event for parents and children at the Hamilton Public Library. Please join us for:

- a reading of the children’s book The Funeral by Matt James, award-winning Author

- a creative family activity exploring grief, loss and meaningful connections

- grief and bereavement resources from Canadian Hospice Palliative Care Association & Canadian Virtual Hospice

CBC Books on The Funeral: "This sensitive and life-affirming story will lead young readers to ask their own questions about life, death and how we remember those who have gone before us"

Please note, this is not a counselling session or grief support group.

While this is a free event, registration is REQUIRED via:  https://www.eventbrite.ca/e/free-public-event-for-parents-and-children-on-grief-and-bereavement-tickets-50531981517

Exploring the Language of Loss: Caring, Supporting and Empowering

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Honoured to offer "Exploring the Language of Loss: Caring, Supporting and Empowering" as the Opening Keynote for the PalCare Network 2018 Fall Symposium.

This workshop will explore the language of loss while also examining tools and resources to support individuals, families, and ourselves. 

Objectives:
1. Examine the impact of loss in person and family-centred care
2. Encourage the caregiver to engage in the dialogue of loss
3. Explore self-care as an essential element of professional practice 

For more information about the PalCare 2018 Fall Symposium, or to register, please visit: http://www.palcarenetwork.org/

From Diagnosis to Bereavement: Engaging the Public Across the Continuum

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Excited to present "From Diagnosis to Bereavement: Engaging the Public Across the Continuum" at the 2018 Partners in Care: Central West Palliative Care Network Annual Conference. 

LEARNING OBJECTIVES:
1. Consider systems challenges impacting care of people facing dying and loss;
2. Examine psychosocial implications for individuals, families and healthcare providers facing illness, grief and bereavement; 
3. Explore compassionate community events as essential opportunities to engage the public following a life-limiting diagnosis through to bereavement. 

For more information, or to register, please visit: http://cwpcn.ca/en/annual-conference/

End Game Documentary and Discussion

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Excited to co-host and participate on the panel for the launch of the 2018-9 season of "The 100% Certainty Project. Death: Something to Talk About". Join us for a screening of the Netflix documentary, "END GAME" followed by a conversation with Palliative Care clinicians.

Our free public event at McMaster University features the brilliant documentary "End Game" from Shoshana Ungerleider, MD highlighting the essential tenets of Hospice Palliative Care. The film showcases the collaboration, compassion and communication as the heart of person and family-centred care at UCSF Medical Center with Steven Pantilat and the extraordinary interprofessional team. The film also highlights the brilliant work of Zen Hospice Project, showcasing Dr. BJ Miller and the extraordinary interprofessional team in Hospice.

Please join us for this engaging event! While the event is free, registration is required via Eventbrite via https://www.eventbrite.ca/e/end-game-documentary-and-discussion-tickets-50535681584

Almost all Canadians would benefit from palliative care. Only one in seven can actually access it at end-of-life

“The key to providing decent palliative care is a little bit of basic planning. Four conditions – cancer, cardiovascular disease, COPD (lung disease) and diabetes – account for 70 per cent of deaths.

Those chronic conditions all have fairly predictable courses of illness in the terminal phase. You don’t get diagnosed with lung cancer or heart failure one day and die the next. It’s a months-long process and providing pain relief (palliation) should be standard, and a priority.

Two in three people receive home care in their last year of life. But only one in seven receive palliative care in the home.

That’s the failure point – and that’s what we need to fix.

There needs to be a commitment – philosophical and financial – to bringing palliative care to patients when they need it and where they want it.

Not everyone can (or should) be cared for at home in their final days. It’s back-breaking, emotionally-draining work for loved ones. Yet many would do so willingly and lovingly.

But they run up against a gross number of barriers, ranging from difficultly getting home visits from physicians (who are poorly remunerated for that work in many provinces), lack of nursing support (because of caps on home care hours), and absurd rules that mean drugs taken at home are not covered by medicare.

All the problems raised by the CIHI report are easily resolved. For example, having paramedics provide palliative care can eliminate transfers to hospitals. Sending doctors and nurses to homes or nursing homes can free up hospital beds – and save money in the process. Not to mention that, at the very least, people deserve a modicum of dignity in their dying days.

The whole point of palliative care is to improve quality of life. We shouldn’t let bureaucratic and structural inadequacies undermine that necessary and noble work.“ by the brilliant André Picard via The Globe and Mail

Healthcare Continuing Education: Palliative Care Certificate Program at Mohawk College

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Excited to be teaching my 9th consecutive semester in the Palliative Care Certificate Program for regulated and certified healthcare professionals (RNs, RPNs, OTs, PTs, RTs, SLPs, Social Workers, Dieticians, Physicians, etc.) with Continuing Education @mohawkcollege 

It is so important to demystify the breadth and scope of this approach to care while highlighting the need for early integration of Palliative Care. Every healthcare provider has an active role to play in supporting anyone (individual or family) facing a complex illness, from time of diagnosis, through to bereavement.

For more information about this holistic and collaborative interprofessional certificate program, please visit: https://www.mohawkcollege.ca/ce/programs/health-and-nursing/palliative-care-multidiscipline-017 

Support for individuals and families across Canada facing Pancreatic Cancer

Am honoured to be part of this brilliant new initiative offering free support to anyone facing Pancreatic Cancer across Canada. This initiative is a collaboration between Pancreatic Cancer Canada Foundation and Wellspring Cancer Support Network

For more information, or to access support, please visit: https://wellspring.ca/online-resources/pancreatic-cancer-peer-support/  

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The Gift of a Hug for a Grieving Child or Teen

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Receiving a #Hug from a loved one is an incredible connection. Giving hand-knitted Hugs to #grieving #kids and #teens facing the dying or death of a loved one is a wonderful gift.

These #knitted Memory Scarves were made by #volunteers with Canadian Virtual Hospice in support of KidsGrief.ca providing a loving Hug and free resources to grieving kids, teens and families facing dying, grief and loss.

For more information, please visit: http://kidsgrief.ca/

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Extremis Documentary and Discussion

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Excited to co-host our next free public event with the Department of Family Medicine, Division of Palliative Care at McMaster University. This evening is part of our compassionate community initiative, “The 100% Certainty Project. Death: Something to Talk About". We will: feature the book “Extreme Measures" by Dr. Jessica Nutik Zitter; view the remarkable Oscar-nominated documentary “Extremis” from Shoshana Ungerleider, MD; provide Advance Care Planning resources from the Canadian Hospice Palliative Care Association; and close the evening with a panel discussion comprised of clinicians and educators. This free public event in support of National Advance Care Planning Day. To register, please visit: Eventbrite

Communication and Connection for Families Coping with Cancer

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I am honoured to have been a guest on this week’s VoiceAmerica - Live Internet Talk Radio Breast Friends Cancer Support Radio Network. Becky Olson and Sharon Henifin of Breast Friends of Oregon, both breast cancer survivors and thrivers have asked me to be their guest to discuss "Communication and Connection for Families Coping with Cancer", demystifying Palliative Care and highlighting the need to support individuals and families of all ages, from time of diagnosis through to bereavement. At the conclusion of our episode, I highlighted the National Hospice and Palliative Care Organization and Canadian Hospice Palliative Care Association as sources of information for people wanting to learn more about Palliative Care in the U.S. and Canada.

Breast Friends is a nonprofit organization started by Sharon and Becky so that no woman would feel alone on her journey and to provide needed resources to those facing the challenge of breast cancer, as well as to their families and friends. Please visit their website for more information: www.BreastFriends.org.

This episode aired live and is now archived at https://www.voiceamerica.com/episode/106520/communication-and-connection-for-families-coping-with-cancer

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Do you know a grieving child or youth (aged 6-17) who could benefit from support?

Do you know a grieving child or youth (aged 6-17) who could benefit from support?

Am proud to be the new Clinical Director for Camp Erin Hamilton and want to share information regarding this extraordinary free camp. 

Camp Erin is a FREE weekend bereavement camp (held annually in June) for children and teens ages 6-17 who are grieving the death of someone close to them (parent, caregiver, sibling). Campers participate in fun, traditional camp activities combined with grief education and emotional support, led by expert bereavement professionals and trained volunteers.

The following short videos capture Camp Erin Hamilton and highlights some of the kids and teens sharing the brilliant range of experiences that both normalize their thoughts and feelings and further empower them to cope with grief and loss.

If you know a grieving child or teen (6-17 yo) who would benefit from this experience, camper applications are now being accepted. Camper applications are due March 26th.

For more information, please watch the following video, or visit Dr. Bob Kemp Hospice or https://kemphospice.org/camp-erinfor details and application forms. 

Ontario Children's Grief Awareness Family Days. Free public events

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Am honoured to be a new partner agency with the Children and Youth Grief Network (CYGN). The CYGN is a collaborative of agencies and organizations that work to support grieving families of all ages.

The CYGN recognizes that "the support received by a grieving child or youth can significantly influence his/her wellbeing. As a result we aim to connect individuals and organizations who provide services and resources that benefit children and youth who are grieving a death."

As the CYGN Mission is "to advocate for educational opportunities and support services that will benefit children and youth who are grieving the dying or the death of someone they care about", in support of National Bereavement Day, the CYGN is offering 2 free community events to support grieving families.

These events are intended for parents/caregivers and their children/teens (under 18 yrs of age) who have experienced the death of a parent/caregiver, child/sibling.

This event is offered for the whole family. Children will participate in facilitated creative activities with trained grief experts, while parents/caregivers will attend a panel presentation and discussions to explore coping strategies and grief support featuring grief professionals and other bereaved families. 

Come explore grief and bereavement coping strategies specifically for families with children and teens. Connect with peers and learn more about the resources available in your community while enjoying the support of caring professionals and other families who share the grief experience.

Snacks, local grief and bereavement resources and gift bag included. 

Reserve your FREE Ontario Children's Grief Awareness Family Day seats via Eventbrite.

2 Dates and 2 Locations!

November 4th @ Wellspring Birmingham Gilgan House (Oakville) https://www.eventbrite.com/e/ontario-childrens-grief-awareness-family-day-oakville-location-tickets-38670386166

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A Wonderful evening at the Burlington Death Cafe!

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Thank you to all in attendance this evening at the City of Burlington, Ontario Death Cafe in support of World Hospice Palliative Care Day, The Carpenter Hospice and the Compassionate City Charter. It was indeed an uplifting evening of inspiring conversations (& lots of laughter!). Great opportunity to demystify the incredible breadth and scope of Hospice Palliative Care!

Special thanks to the staff and volunteers of Carpenter Hospice who gave of their time this evening, and to our wonderful hosts at Emma's Back Porch & Water Street Cooker!

Next Burlington Death Cafe is in April in support of Advance Care Planning Day! #talkaboutdeath

How the fear of dying taught me how to live

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"Live. Put your phone down. Talk to the person in front of you. Hold the door for people. Smile if someone catches your eye. Say thank you. Say please. Give hugs. Compliment people. Compliment yourself. Love yourself. No one will remember what size the pants are you are wearing but they will remember the way you walked in them. So walk softly. Speak boldly. Love gently. Laugh loudly. Call someone if they cross your mind. Allow yourself to be happy for others, and most importantly allow yourself to be happy for yourself, through every stage and step of your life. Be happy. Life doesn't have to be perfect for it to be perfect."

Source: How the fear of dying taught me how to live

Burlington Death Café. In Celebration of World Hospice Palliative Care Day

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In Celebration of World Hospice Palliative Care Day, and in support of the Burlington Compassionate City Charter and the Carpenter Hospice, the Burlington Death Café will be held on October 11th, 2017 from 7-9pm at Emma's Back Porch.

Death Café is an international movement where people, often strangers, gather together to eat, drink and discuss death. The objective is 'to increase awareness of death with a view to helping people make the most of their (finite) lives’.

At Death Café, you can expect a group directed discussion of death with no agenda, objectives or themes. It is a discussion group, rather than grief support or a counselling session. It is a respectful, public event where people of all communities and belief systems are welcome to have discussions about death.

Interesting conversation is guaranteed!

This is a free public event, but seating is limited. For information, or to register, please visit Eventbrite

For more information about Death Café, please visit http://deathcafe.com/

Cancer Mythbusters: Is Palliative Care Only for End-of-Life Patients?

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"Palliative Care is an often misunderstood specialty, focused on providing support and pain management strategies to cancer patients throughout all stages of their illness. This approach, which can be blended into curative cancer therapy, focuses on care for the whole person: mind, body, and spirit."

Source: Cancer Mythbusters - Is Palliative Care Only for End-of-Life Patients?

Calling for a Palliative Care Culture

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Palliative Care is the future of medicine "It has social and political dimensions that spring from its grounding in a commitment to relieve total pain, which includes spiritual pain."

Source: Calling for a Palliative Care Culture

Unfinished Business in Families of Terminally Ill with Cancer Patients

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" Families with unfinished business had significantly higher depression and grief scores after bereavement compared with those without."

Source: Unfinished Business in Families of Terminally Ill with Cancer Patients

YES, I WRITE ABOUT DEATH: ON THE WAYS PEOPLE RESPOND TO A “DEATH JOB” AND HOW I HANDLE IT

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"I tell them that it’s never my goal to glamorize death or tell people how they should or shouldn’t feel about death. I only hope my writing gives people permission to broach the topic."

Source: YES, I WRITE ABOUT DEATH: ON THE WAYS PEOPLE RESPOND TO A “DEATH JOB” AND HOW I HANDLE IT