Awareness

Exploring the Role of Social Work in Palliative Care

So grateful to speak with my friends and colleagues Drs. Hsien Seow and Sammy Winemaker on their podcast The Waiting Room Revolution.

We explored the role of Social Work in Palliative Care, the value of proactive and compassionate person and family-centred support following diagnosis of any serious illness, exploring loss and grief through to end-of-life and bereavement, creating space for essential conversations, and the healing power of silence.

Follow their podcast for essential tips and tools to navigate the healthcare system following diagnosis of a serious illness. To listen to our conversation, click here

The ARQ of Grief Support

The ARQ of Grief Support:

  1. Awareness

  2. Reflection

  3. Questions

The ARQ of Grief Support via NACG, The Dougy Center & KinderCare is a framework you can use to create meaningful, supportive interactions with children, teens and adults facing grief, loss & grieving


Source: https://childrengrieve.org/12-resource/309-resources-2

Join the movement to #UnderstandGrief

Join the #UnderstandGrief movement! Here's how:

1. Advocate that grief is not a mental disorder; our social and cultural context impacts how we grieve. Question the narrative of “mental disorders” and consider all the factors that can contribute to how a person responds to the death of someone in their lives.

2. Consider the language you use and how it can impact people. People who are grieving often receive patronizing responses to “move on” or “find closure” when what they need most is to feel understood.

3. Educate others about being grief-informed. Share the 10 core principles of being grief-informed.

4. Broaden the dialogue about the need for diversity and inclusivity in grief research and support. We need to reach beyond limited and narrow perspectives to understand and support how grief is experienced by people of different beliefs, cultures, ethnicities, backgrounds, abilities, and experiences.

5. Challenge myths about grief. Grief doesn’t follow an orderly path. When someone is grieving, don’t impose expectations on them about how they should feel or respond, or how long their grief should last. Every experience of loss is different.

6. Acknowledge and address the injustices of labels. Rather than labeling people who are grieving with a mental disorder, consider framing the challenges we face when we’re grieving as just that: challenges we experience when coping with the death of someone in our lives.

7. Recognize and acknowledge that every experience of loss is a unique experience. People will likely respond to the death of each person in their life differently because every relationship is unique. 

8. Strengthen relational connections. We need connections with others who are understanding and compassionate, especially when difficult and painful things happen.

9. Honour lived experience. To honour the lived experience of others involves offering the gift of nonjudgmental listening, open mindedness, and support.

10. Be compassionate with yourself and with others. One of the ways we can “walk our talk” is to demonstrate the same compassion toward ourselves that we hope others will have for themselves, particularly when we’re grieving.

Via The Dougy Center

C. Elizabeth Dougherty Consulting - Fall 2021 Newsletter

I am honoured to share my Fall 2021 newsletter including resources for individuals and families of all ages facing a complex illness, following diagnosis through to bereavement. I am also grateful to also share my teaching experiences including: undergraduate and graduate Social Work Education; undergraduate Medical Education; and Interprofessional Education for healthcare providers exploring informed conversations, honouring person and family-centred care, demystifying grief, and advocating for palliative care.

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Myths about Palliative Care

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It is so important to demystify the incredible scope and breadth of Palliative and end of life Care. For National Hospice Palliative Care Week in Canada (May 2nd- 8th), I am re-posting a great resource from CVH - an incredible source of evidence-informed Hospice Palliative Care resources for individuals, families, healthcare providers or volunteers serving anyone facing life-limiting illness, grief and bereavement. 

An infographic about 10 myths that are often encountered in Palliative Care (also available in French, Arabic, Brazilian Portuguese, Catalan, Chinese, Cree, Hebrew, Inuinnaqtun, Japanese, Portuguese, Spanish and Tagalog).

Source: Canadian Virtual Hospice

Demystifying Hospice Palliative Care is essential!

National Hospice Palliative Care Week in Canada is May 2nd-8th, 2021.

Proactive and equitable access to Hospice Palliative Care is not standard, with barriers (including a lack of education, funding and research) contributing to the myths that impact delivering high-quality person and family-centred collaborative care. Integrated support for loss, grief and bereavement is lacking.

Did you know....

-Between 62% and 89% of those who die could benefit from palliative care, including nearly everyone who does not die unexpectedly

- 51% of the children who died in 2012 only received Paediatric Palliative Care for the last 30 days of their lives

-62% of Canadians who received palliative care did so in an acute care hospital in their last month of life

-Few Canadians (15%) have early access to palliative care in the community

-80% of the time, palliative care was provided during admission was unplanned or through an emergency department  

-Canadians between the ages of 45 and 74 are more likely than younger adults and older seniors to receive palliative care

-There are ~88 residential hospices and the majority require a prognosis of <3 months to be admitted

Source: CHPCA Fact Sheet 2021 

For more information, please visit the Canadian Hospice Palliative Care Association

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Thrilled to host "How We Talk About Grief" at gritLIT!

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Am truly honoured to host “How We Talk About Grief” on behalf of The 100% Certainty Project. Death: Something to Talk About for gritLIT 2021. I am thrilled to meet both Dakshana Bascaramurty and Christa Couture and explore their experiences with loss and grief as we discuss their exquisite memoirs.

An all-too-familiar certainty, grief is an emotion that’s difficult for most of us to put into words. In This Is Not the End of Me, Dakshana Bascaramurty documents the final years of a husband and father diagnosed with terminal cancer at age 33. In How to Lose Everything, Christa Couture shares her own excruciating loss, including the amputation of her leg as a cure for bone cancer and the death of two children.

Join me on April 18th at 2pm as I ask these brilliant authors to discuss the challenges of talking and writing about grief and how the process of doing so helps with healing.

#gritLIT2021

April 16th is Advance Care Planning Day in Canada

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April 16th is National Advance Care Planning Day in Canada, a day to promote conversations about your wishes and values for your future health and personal care in the event that you are unable to communicate for yourself. This year’s #ACPDay2021 is based on the theme "Advance Care Planning: An Essential Conversation for Everyone".

The ACP in Canada website - https://www.advancecareplanning.ca/acpday/ - features FREE downloadable resources, including posters and social media graphics for organizations and individuals across Canada to promote ACP.

Canadians have spoken, and although 80% of the population believes Advance Care Planning is important, less than 1 in 5 Canadians have an Advance Care Plan. Fortunately, the ACP website at www.advancecareplanning.ca is full of free information, tools, and conversation starters to help with starting the conversation. There are also links to provincial and territory-specific ACP resources across Canada.

How are you connecting with friends and family during these times? #ACPinCanada.

Excited to be on Faculty for Learning Essential Approaches to Palliative Care (LEAP) McMaster

Excited to be on Faculty for this exciting collaboration. Join us for this Learning Essential Approaches to Palliative Care (#LEAP) #CPD!

Pallium Canada and the Division of Palliative Care, Department of Family Medicine at McMaster University have partnered to create a unique #online #learning opportunity for #healthcare professionals.

This is a unique #opportunity to continue learning about the #palliative care approach. The #workshop addresses contemporary topics of relevance to care providers across many care settings including #hospital, #community and #residential care, as well as special challenges encountered during transitions in care.

These #workshops are ideal for any health care professional (e.g. #Physician, #Nurse, #SocialWorker, #Pharmacist, etc.) who would like continued learning on the #PalliativeCare approach.

Session topics include:
- Recap of the Palliative Care Approach
- Unique Situations
- Transitions in Long-Term Care
- In-Depth Conversations
- Advanced Liver and Heart Diseases
- Kidney and Neurological Diseases

In recognition of the hard work of health care professionals throughout the #COVID19 pandemic, the price for these sessions has been reduced.

Visit: https://pallium.myshopify.com/collections/palliative-care-in-depth-workshop

C. Elizabeth Dougherty Consulting Newsletter Winter 2021

Honoured to share my Winter 2021 newsletter including resources for individuals and families of all ages facing a complex illness, from diagnosis through to bereavement. Grateful to also share undergraduate and graduate Social Work education, along with medical education and interprofessional education for healthcare providers demystifying palliative care.

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Today is Children's Grief Awareness Day (#GGAD)

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CGAD is designed to help us all become more aware of the needs of grieving children teens and families — and of the benefits they obtain through the support of others. Children's Grief Awareness Day is an opportunity to make sure that grieving children receive the support they need.

Before they graduate from high school, one child out of every 20 children will have a parent die - and that number doesn't include those who experience the death of a brother or sister, a close grandparent, an aunt or uncle, or friend.

Grieving children often feel set apart, different from their peers, alone and not understood. Every school and every community has children who have experienced some type of loss. Even if they keep their loss and experience to themselves, there are many children who are grieving among us.

These children can be helped to not feel so alone. Children and adults together can show their support for grieving children and show their awareness of what grieving children might be going through by participating in Children's Grief Awareness Day.

Source: CGAD. For more information or resources, visit: https://www.childrensgriefawarenessday.org/cgad2/about/index.shtml

DID YOU KNOW???? On CGAD, the CN Tower / La Tour CN will be illuminated in blue to raise awareness of this important issue

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November 17th is National Bereavement Day 2020 in Canada

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Grief and bereavement support is an essential element of care for individuals and families of all ages.

This year, the Canadian Hospice Palliative Care Association (CHPCA) invites Canadians on a shared journey that fosters compassion and encourages them to cope with their grief by supporting each other through living and grieving. We might be physically distant, but grief brings us together. We learn to live with the loss and grief in ways that maintain and honour our bond with the person who died but don’t limit our capacity for joy, pleasure and a meaningful life. At this trying time, we might be physically distant, but we are emotionally, spiritually and socially connected through our grief. Source: CHPCA

For more information, visit: CHPCA

In support of Movember, a free webinar demystifying Advance Care Planning for Men with Prostate Cancer

In support of Movember Canada & TrueNTH, am sharing a free webinar demystifying Advance Care Planning for Men with Prostate Cancer.

Facing prostate cancer is difficult enough. But advance care planning (ACP) can give your loved ones the confidence and peace of mind to make healthcare decisions for you if you are unable to communicate for yourself. This webinar will provide information about why ACP is important, and a step-by-step guide to advance care planning.

The purpose of this workshop is to:
- Provide an overview of ACP
- Foster understanding as to why ACP is important for anyone facing prostate cancer,
- Help men with prostate cancer, their partners and families learn the steps involved in the ACP process, and how to start these conversations,
- Explore some free ACP resources from Advance Care Planning Canada

The free webinar can be accessed via https://vimeo.com/189996475

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The Saturation of Grief in the time of COVID, Honouring Loss and Exploring Healing

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Honoured to present "The Saturation of Grief in the time of COVID, Honouring Loss and Exploring Healing" for Ethics and Diversity Grand Rounds organized by Ethics & Care Ecologies Program at Hamilton Health Sciences with Dr. Andrea Frolic.

Exploring universal yet unique experiences of loss and grief in healthcare, alongside the stigma, and creating brave spaces for healing is essential - for ALL involved - especially now.

Caring for the Caregiver: Recognizing the Impact of Vicarious Trauma on Helpers and Strategies for Self-Care

Am truly honoured to be offering the Plenary Session “Caring for the Caregiver: Recognizing the Impact of Vicarious Trauma on Helpers and Strategies for Self-Care“ for the Annual Children’s Grief Awareness Symposium at Lighthouse Centre for Grieving Children, Youth and Families.

For information or to register, please visit: https://www.grievingchildrenlighthouse.org/index.php/news-and-events/upcoming-events/104-events/upcoming-events/events-2019/482-grief-symposium-2019#live-session-descriptions

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About the Lighthouse Centre for Grieving Children, Youth and Families:

“The Lighthouse provides a place where children, teens, and their parents and guardians who have experienced a life changing death loss can come together to be part of a community. Through participation in facilitated peer groups, they find understanding, stability and support.

Any child or teen, ages 3-19, who has experienced the death of an immediate family member or very close friend can join a group. Parents and guardians are welcome to attend the adult peer support groups which are offered at the same time as the children/teen groups.

Often, family members feel the need to protect one other from their feelings. At The Lighthouse, children and youth have their own space where they can feel safe to share their feelings with peers who have also experienced a life changing death. This expression of feelings, thoughts and experiences helps them reach an understanding of their loss and builds hope and encouragement for their future.”

Source: Lighthouse

To donate to the Lighthouse Centre for Grieving Children, Youth and Families, please visit: https://www.grievingchildrenlighthouse.org/index.php/support-us

Death Cafe for healthcare professionals, health science students or healthcare volunteers

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Excited to be facilitating another Death Cafe for the Division of Palliative Care, McMaster Faculty of Health Sciences at McMaster University.

If you are a  Healthcare Provider, Health Science Student, Hospice Palliative Care  Volunteer  or Funeral Service Employee, this Death Cafe is specifically for you!

A Death Cafe is a group directed discussion of death with no agenda, objectives or themes. It is a discussion group rather than a grief support or counselling session. The objective is 'to increase awareness of death with a view to helping people make the most of their (finite) lives'. Source: Death Cafe

Please join us at this FREE event at the David Braley Health Sciences Centre on Wednesday, July 24th from 6-8pm as part of our Public Health Palliative Care Elective.

Please help spread the word. While the event is free, registration is required via Eventbrite: https://www.eventbrite.ca/e/death-cafe-tickets-62361840945?fbclid=IwAR2aqlWTC8CcDPU4TKspXU3hZC65Om4ZxZZikvgh9ztqz3TEUe9GJcFLJ00

#BustingTheMyths about Hospice Palliative Care

It’s Hospice Palliative Care Week in Canada. 

The campaign (May 5th – 11th) this year focuses on #BustingTheMyths about Hospice Palliative Care

This year, the Canadian Hospice Palliative Care Association (CHPCA) designed a “Busting the Myths” campaign as a response to the need to educate Canadians including caregivers, physicians and all healthcare providers, citizens and political leaders around common myths about hospice palliative care.

The #BustingTheMyths campaign aims to empower Canadians through education by identifying and clarifying misperceptions about Hospice Palliative Care in Canada.

Working together to educate one another is a vital step in the pursuit of excellent Hospice PalliativeCare.

Source: CHPCA Canadian Hospice Palliative Care Association

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April 2nd is National Carers Day

About National Carers Day

In April 2010, the Parliament of Canada unanimously adopted a motion declaring the first Tuesday in April “The Invisible Work Day.” This day was designated to recognize the importance of the “invisible” unpaid work carried out by parents and caregivers on behalf of their children and aging family members, as well as the volunteer work done in the community.  Recognizing that caregivers come from all walks of life and take on many roles, the first Tuesday in April is a special day where we can recognize all caring Canadians.

#NationalCarersDay

Source: https://www.carerscanada.ca/national-carers-day/

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EXPLORING GRIEF AND LOSS LITERACY: SUPPORTING AND EMPOWERING SCHOOL COMMUNITIES

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Am thrilled to be offering a full-day of training on Feb. 1st for the Halton District School Board on “EXPLORING GRIEF AND LOSS LITERACY: SUPPORTING AND EMPOWERING SCHOOL COMMUNITIES”

Will be honoured to be present with so many professionals as we spend the day exploring: 

- Grief and Loss Literacy (related to dying, death and non-death losses)

- Stigma Related to Illness, Dying, Grief

- The Dialogue of Loss

- Support Across School Communities

- Promoting Capacity & Engagement

- Opportunities for Self-Care

Looking forward to sharing some brilliant resources!